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Region Gatherings Archives - wolfhirschhorn.org
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Hello All, I’m not sure if all of the wolfhirschhorn.org community knows about this year’s upcoming National Gathering in Indianapolis, Indiana, for families and friends of kids with 4p-/WHS.  Our family has attended this four day long event,  sponsored by the 4p- Support Group, ever since we found out our son was diagnosed with 4p-.  We have learned that the every-other-year National Gatherings provide a great opportunity to meet other […]

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There is a bond that is shared between families with children with rare syndromes.  It is this indescribable thing.  The bond is especially strong between the mothers, but really it is a family thing.  They are the people who pull you through the darkest hours.  They are the people who have been there / done […]

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