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Region Gatherings Archives - wolfhirschhorn.org
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Hello All, I’m not sure if¬†all of the wolfhirschhorn.org community knows about this year’s upcoming¬†National Gathering¬†in Indianapolis, Indiana, for families and friends of kids with 4p-/WHS.¬†¬†Our family has attended¬†this¬†four day long event,¬†¬†sponsored¬†by the 4p- Support Group, ever since¬†we found out our son was diagnosed with 4p-.¬†¬†We have learned that the¬†every-other-year¬†National Gatherings provide a¬†great opportunity¬†to¬†meet other […]

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There is a bond that is shared between families with children with rare syndromes.¬† It is this indescribable thing.¬† The bond is especially strong between the mothers, but really it is a family thing.¬† They are the people who pull you through the darkest hours.¬† They are the people who have been there / done […]

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