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"Region Gatherings"
Hello All, I’m not sure if all of the wolfhirschhorn.org community knows about this year’s upcoming National Gathering in Indianapolis, Indiana, for families and friends of kids with 4p-/WHS. Our family has attended this four day long event, sponsored by the 4p- Support Group, ever since we found out our son was diagnosed with 4p-. We have learned that the every-other-year National Gatherings provide a great opportunity to meet other […]
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There is a bond that is shared between families with children with rare syndromes. It is this indescribable thing. The bond is especially strong between the mothers, but really it is a family thing. They are the people who pull you through the darkest hours. They are the people who have been there / done […]
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