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When it comes to buying gifts for our kiddos – for birthdays and holidays – it can be tricky to know what to invest in. Will it stay on the tray? Will she be able to access and activate it? Will he be interested in it? Or… will it end up collecting dust in the […]

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If you’ve ever wondered what a real superhero looks like, we have the answer! The Holiday Fundraiser item is a Superhero Photobook. Cover reveal… Within the pages of this special book, you’ll find the photos of 36 superheroes – children with Wolf-Hirschhorn Syndrome, who wow us every day with their bravery and heart. Here’s a […]

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We’d love an update on how your kiddo is doing! What are the challenges you’re facing this week, or in the coming months? Are you contemplating a procedure, or do you have surgical outcomes to share? How is therapy going? What new things have you tried? Do seizures continue to be a big factor, and […]

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