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	<title>wolfhirschhorn.org</title>
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	<link>http://wolfhirschhorn.org</link>
	<description>The Real Story about Wolf-Hirschhorn Syndrome</description>
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		<title>Meet my little treasure Cassidy Renee</title>
		<link>http://wolfhirschhorn.org/2013/05/uncategorized/meet-my-little-treasure-cassidy-renee/</link>
		<comments>http://wolfhirschhorn.org/2013/05/uncategorized/meet-my-little-treasure-cassidy-renee/#comments</comments>
		<pubDate>Thu, 16 May 2013 15:43:38 +0000</pubDate>
		<dc:creator>Tamara</dc:creator>
				<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10896</guid>
		<description><![CDATA[I have been reading WHS stories on this website for a while, but never wrote anything myself. My daughter  Cassidy was born on June, 5 2012. She has WHS… My entire pregnancy was fine. Neither ultrasounds nor prenatal doctor visits showed any abnormalities with her. We could not wait to meet her, but she was [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/05/uncategorized/meet-my-little-treasure-cassidy-renee/feed/</wfw:commentRss>
		<slash:comments>8</slash:comments>
		</item>
		<item>
		<title>Meu filho Filipe</title>
		<link>http://wolfhirschhorn.org/2013/05/uncategorized/meu-filho-filipe/</link>
		<comments>http://wolfhirschhorn.org/2013/05/uncategorized/meu-filho-filipe/#comments</comments>
		<pubDate>Thu, 09 May 2013 02:47:22 +0000</pubDate>
		<dc:creator>cristiane cardoso</dc:creator>
				<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10891</guid>
		<description><![CDATA[Fiquei muito feliz ao encontrar este site que fala de crianças com sindrome de wolf hirschhorn, tenho um filho de 18 anos, e apenas no ano passado é que descobrimos que ele tinha esta sindrome, até então ele era diagnosticado pelas características físicas como sindrome de optiz. Para nós foi uma grande surpresa, depois de [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/05/uncategorized/meu-filho-filipe/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Elsa: 16 months</title>
		<link>http://wolfhirschhorn.org/2013/04/elsa/elsa-16-months/</link>
		<comments>http://wolfhirschhorn.org/2013/04/elsa/elsa-16-months/#comments</comments>
		<pubDate>Sun, 28 Apr 2013 00:30:23 +0000</pubDate>
		<dc:creator>Anitra</dc:creator>
				<category><![CDATA[Elsa]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10883</guid>
		<description><![CDATA[Elsa is 16 months and really hitting her stride! Around the time of her one-year birthday, it seemed her development had pressed the pause button. We think she must have overheard us discussing this, because shortly thereafter, there were some pretty major developments: -  Reaching and grasping: This was a no-go at her one-year eval. [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/elsa/elsa-16-months/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>grace has a new baby sister&#8230;&#8230;&#8230;..x</title>
		<link>http://wolfhirschhorn.org/2013/04/grace/grace-has-a-new-baby-sister-x/</link>
		<comments>http://wolfhirschhorn.org/2013/04/grace/grace-has-a-new-baby-sister-x/#comments</comments>
		<pubDate>Wed, 24 Apr 2013 20:02:50 +0000</pubDate>
		<dc:creator>jaceyjay87</dc:creator>
				<category><![CDATA[Grace]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10875</guid>
		<description><![CDATA[Long time since i last posted&#8230;&#8230;.. Grace has a new baby sister born December 2012&#8230; her name is rose and her and grace are the best of friends&#8230;&#8230; We have seen a big change in Grace since we bought Rose home.. within a week of rose being home Grace learnt to sit unaided which is [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/grace/grace-has-a-new-baby-sister-x/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>Our Ali</title>
		<link>http://wolfhirschhorn.org/2013/04/ali/our-ali/</link>
		<comments>http://wolfhirschhorn.org/2013/04/ali/our-ali/#comments</comments>
		<pubDate>Mon, 22 Apr 2013 04:15:23 +0000</pubDate>
		<dc:creator>mrskim</dc:creator>
				<category><![CDATA[Ali]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10867</guid>
		<description><![CDATA[The following post was composed by a grade 4/5 class who love Ali as a classmate, a friend, and a boy with WHS.  We want everyone to know what he means to us. By Division 6, W&#8230; Elementary      There are very few people that have Wolf-Hirschhorn Syndrome in the world but in Division 6 [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/ali/our-ali/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>The Sibling Effect Part 2: The Other Point of View</title>
		<link>http://wolfhirschhorn.org/2013/04/kendall/the-sibling-effect-part-2-the-other-point-of-view/</link>
		<comments>http://wolfhirschhorn.org/2013/04/kendall/the-sibling-effect-part-2-the-other-point-of-view/#comments</comments>
		<pubDate>Fri, 19 Apr 2013 13:12:58 +0000</pubDate>
		<dc:creator>KevinO</dc:creator>
				<category><![CDATA[Kendall]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10852</guid>
		<description><![CDATA[Some time ago, I wrote an article about our children and what siblings mean to them across all phases of their growth and development. There is no question that today, Kendall has developed more quickly due to the presence and interaction that her siblings provide her on a daily basis. Some of the activity she&#8217;s [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/kendall/the-sibling-effect-part-2-the-other-point-of-view/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Meet my beautiful Niece Nayana</title>
		<link>http://wolfhirschhorn.org/2013/04/uncategorized/meet-my-beautiful-niece-nayana/</link>
		<comments>http://wolfhirschhorn.org/2013/04/uncategorized/meet-my-beautiful-niece-nayana/#comments</comments>
		<pubDate>Wed, 17 Apr 2013 04:17:41 +0000</pubDate>
		<dc:creator>AshleyRodriguez</dc:creator>
				<category><![CDATA[Featured Stories]]></category>
		<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[introduction]]></category>
		<category><![CDATA[Nayana]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10836</guid>
		<description><![CDATA[Hello everyone this is my first time on this website and thought I should share my niece with all of you since I read some of the stories of other children with WHS and it touched my heart. So I guess ill tell you more about my niece,her name is Nayana.  When my family first found out [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/uncategorized/meet-my-beautiful-niece-nayana/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>Mia &#8211; Spring 2013</title>
		<link>http://wolfhirschhorn.org/2013/04/mia-rose/mia-spring-2013/</link>
		<comments>http://wolfhirschhorn.org/2013/04/mia-rose/mia-spring-2013/#comments</comments>
		<pubDate>Mon, 15 Apr 2013 22:39:44 +0000</pubDate>
		<dc:creator>Ross</dc:creator>
				<category><![CDATA[Mia Rose]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10816</guid>
		<description><![CDATA[Looking at her now I find it hard to believe Mia&#8217;s the same tiny baby we brought home from the hospital 2 years and 3 months ago. She weighs 15lb and 5oz, can transition in a controlled manner from sitting to lying, roll like a boss in all directions and prop her self up on her [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/mia-rose/mia-spring-2013/feed/</wfw:commentRss>
		<slash:comments>10</slash:comments>
		</item>
		<item>
		<title>WHS discussion board open for business (again)</title>
		<link>http://wolfhirschhorn.org/2013/04/uncategorized/whs-discussion-board-open-for-business-again/</link>
		<comments>http://wolfhirschhorn.org/2013/04/uncategorized/whs-discussion-board-open-for-business-again/#comments</comments>
		<pubDate>Mon, 15 Apr 2013 21:02:05 +0000</pubDate>
		<dc:creator>Ross</dc:creator>
				<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10799</guid>
		<description><![CDATA[Back in 2011 we launched the wolfhirschhorn.org discussion board and, although there was a lot of great activity from the community, it eventually became over-run with spam comments and we were left with no choice but to shut it down. We have now cleared all the bogus messages and taken some additional measures to make [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/uncategorized/whs-discussion-board-open-for-business-again/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>And then there were 4!</title>
		<link>http://wolfhirschhorn.org/2013/04/news/and-then-there-were-4/</link>
		<comments>http://wolfhirschhorn.org/2013/04/news/and-then-there-were-4/#comments</comments>
		<pubDate>Thu, 11 Apr 2013 03:54:28 +0000</pubDate>
		<dc:creator>KevinO</dc:creator>
				<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10784</guid>
		<description><![CDATA[Back a few months, I signed up some additional help with the wolfhirschhorn.org-1-man-show by adding Ross Lennox. To this day, his existence continues to be irreplaceable to all of us in ways that nobody will ever notice. I can&#8217;t thank him enough for all that he has done to keep the site live, up to [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/news/and-then-there-were-4/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>What&#8217;s New with Norrah</title>
		<link>http://wolfhirschhorn.org/2013/04/norrah/whats-new-with-norrah/</link>
		<comments>http://wolfhirschhorn.org/2013/04/norrah/whats-new-with-norrah/#comments</comments>
		<pubDate>Sun, 07 Apr 2013 12:37:21 +0000</pubDate>
		<dc:creator>KnowingNorrah</dc:creator>
				<category><![CDATA[Norrah]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10753</guid>
		<description><![CDATA[We&#8217;ve meant to post an update on Norrah for quite some time.  In various moments and seasons we&#8217;ve thought &#8211; &#8220;we should really write about this&#8221; only to find that our daily life routines (and unexpected events too) distract us from putting fingers to keyboard and telling our friends about our little lady and all of her [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/norrah/whats-new-with-norrah/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>Acceptance. That hard pill to swallow</title>
		<link>http://wolfhirschhorn.org/2013/04/alexander/acceptance-that-hard-pill-to-swallow/</link>
		<comments>http://wolfhirschhorn.org/2013/04/alexander/acceptance-that-hard-pill-to-swallow/#comments</comments>
		<pubDate>Sun, 07 Apr 2013 01:58:37 +0000</pubDate>
		<dc:creator>Kristen</dc:creator>
				<category><![CDATA[Alexander]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10746</guid>
		<description><![CDATA[I remember when Alexander was young.  I&#8217;m going to be brutally honest about my arrogance. He was so young and we had years and years to prove people wrong. The one thing I know for sure Children with WolfHirschhorn Syndrome will fight &#8230;.. they are fighters. I pushed him to eat orally.  He fed from [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/alexander/acceptance-that-hard-pill-to-swallow/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Happy Birthday Momma Mia!</title>
		<link>http://wolfhirschhorn.org/2013/04/amelia/happy-birthday-momma-mia/</link>
		<comments>http://wolfhirschhorn.org/2013/04/amelia/happy-birthday-momma-mia/#comments</comments>
		<pubDate>Fri, 05 Apr 2013 17:04:44 +0000</pubDate>
		<dc:creator>crivera75</dc:creator>
				<category><![CDATA[Amelia]]></category>
		<category><![CDATA[Birthday]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10138</guid>
		<description><![CDATA[I hear a lot of people say, “Oh where did the time go?” or “When did this happen?” when their children turn a certain age. I know I was guilty of this when the boys both entered Kindergarten and for Joey, Middle School. Today Amelia turns five and this is the furthest sentence from my [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/04/amelia/happy-birthday-momma-mia/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>Ava Ruby</title>
		<link>http://wolfhirschhorn.org/2013/02/ava-ruby/10119/</link>
		<comments>http://wolfhirschhorn.org/2013/02/ava-ruby/10119/#comments</comments>
		<pubDate>Thu, 07 Feb 2013 17:25:19 +0000</pubDate>
		<dc:creator>Ruth</dc:creator>
				<category><![CDATA[Ava Ruby]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10119</guid>
		<description><![CDATA[&#160; I&#8217;m not sure if I&#8217;m writting this in the right place but hey ho. I&#8217;d like y to introduce my daughter Ava, she was born on 27th January 2012 weighing 4lb 2oz. (we live in the UK) Anyway here&#8217;s our story&#8230; We found out she had whs when I was 30 weeks pregnant.. It [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/02/ava-ruby/10119/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>Molluscum Contagiosum&#8230;&#8230;</title>
		<link>http://wolfhirschhorn.org/2013/02/nathaniel/molluscum-contagiosum/</link>
		<comments>http://wolfhirschhorn.org/2013/02/nathaniel/molluscum-contagiosum/#comments</comments>
		<pubDate>Wed, 06 Feb 2013 00:12:53 +0000</pubDate>
		<dc:creator>Letty</dc:creator>
				<category><![CDATA[Nathaniel]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10099</guid>
		<description><![CDATA[Nathaniel has had what looked like fluid-like red bumps on his lower back from the time he was born and they stayed the same&#8230;.never changed. But at the end of December I noticed what looked to be a heat rash under his pits&#8230;.this was a week before admitted for Pneumonia. I figured it was probably [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/02/nathaniel/molluscum-contagiosum/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>First time on site.  Schools</title>
		<link>http://wolfhirschhorn.org/2013/02/uncategorized/first-time-on-site-schools/</link>
		<comments>http://wolfhirschhorn.org/2013/02/uncategorized/first-time-on-site-schools/#comments</comments>
		<pubDate>Sun, 03 Feb 2013 03:21:03 +0000</pubDate>
		<dc:creator></dc:creator>
				<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10082</guid>
		<description><![CDATA[My son Joseph is 15 years old  but I have never posted on this site. My job may transfer me to another state . We are now in new jersey. Joe has always been in a private school and has done wonderful. In fact He won a gold medal In the equestrian division of the [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/02/uncategorized/first-time-on-site-schools/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Nathaniel&#8217;s overdue update&#8230;</title>
		<link>http://wolfhirschhorn.org/2013/01/nathaniel/nathaniels-overdue-update/</link>
		<comments>http://wolfhirschhorn.org/2013/01/nathaniel/nathaniels-overdue-update/#comments</comments>
		<pubDate>Thu, 31 Jan 2013 20:44:58 +0000</pubDate>
		<dc:creator>Letty</dc:creator>
				<category><![CDATA[Nathaniel]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10083</guid>
		<description><![CDATA[Well, so much has happened since my last post. Nathaniel spent this past Halloween in the hospital. That&#8217;s when he was sick and lost weight, so he had an emergency g-tube placed. Then 11/27/13, there we were, back in PICU-seizure. Then 12/27/13&#8230;.he was originally admitted because of Pneumonia and respiratory distress. A few hours later [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/01/nathaniel/nathaniels-overdue-update/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Strabismus Correction Surgery</title>
		<link>http://wolfhirschhorn.org/2013/01/isabella-n/strabismus-correction-surgery/</link>
		<comments>http://wolfhirschhorn.org/2013/01/isabella-n/strabismus-correction-surgery/#comments</comments>
		<pubDate>Mon, 07 Jan 2013 09:35:24 +0000</pubDate>
		<dc:creator>M</dc:creator>
				<category><![CDATA[Isabella N]]></category>
		<category><![CDATA[Strabismus correction Surgery]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10071</guid>
		<description><![CDATA[Hi everyone, I&#8217;m posting this in here because it seems that the discussion area has been spam attacked.  Isabella is going to have the strabismus surgery on the 14th this month, this is her first invasive surgery so i&#8217;m a bit anxious.  Has anyones kids gone thru this, if so can you let me know you [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/01/isabella-n/strabismus-correction-surgery/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>Elsa: 1 year</title>
		<link>http://wolfhirschhorn.org/2013/01/elsa/elsa-1-year/</link>
		<comments>http://wolfhirschhorn.org/2013/01/elsa/elsa-1-year/#comments</comments>
		<pubDate>Sun, 06 Jan 2013 03:26:55 +0000</pubDate>
		<dc:creator>Anitra</dc:creator>
				<category><![CDATA[Elsa]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=6693</guid>
		<description><![CDATA[Elsa just turned 1, and we&#8217;re looking forward to lots of progress in 2013. We&#8217;d love to share her current status across a few areas &#8212; ones that we&#8217;re always keen to read in other people&#8217;s posts, as we look to the future and wonder what might be in store for our angel. Hope this [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2013/01/elsa/elsa-1-year/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>Bella Isabella at 2 years old x</title>
		<link>http://wolfhirschhorn.org/2012/12/isabella-n/bella-isabella-at-2-years-old-x/</link>
		<comments>http://wolfhirschhorn.org/2012/12/isabella-n/bella-isabella-at-2-years-old-x/#comments</comments>
		<pubDate>Sat, 29 Dec 2012 12:38:44 +0000</pubDate>
		<dc:creator>M</dc:creator>
				<category><![CDATA[Isabella N]]></category>

		<guid isPermaLink="false">http://wolfhirschhorn.org/?p=10045</guid>
		<description><![CDATA[Hi everyone, It has been a while and i&#8217;m glad to be back and active! Much has happened and i&#8217;m not sure where to start.  Many questions to ask too and was really hoping i can use the WHS network here to get some answers.  So here goes the update! Weight and Height Isabella is [...]]]></description>
		<wfw:commentRss>http://wolfhirschhorn.org/2012/12/isabella-n/bella-isabella-at-2-years-old-x/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
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