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We’d love an update on how your kiddo is doing! What are the challenges you’re facing this week, or in the coming months? Are you contemplating a procedure, or do you have surgical outcomes to share? How is therapy going? What new things have you tried? Do seizures continue to be a big factor, and […]
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Our Annual Halloween Costume Contest was established in 2011 to promote awareness and provide support to children and families diagnosed with Wolf-Hirschhorn Syndrome. Each year, we celebrate their addition to our lives by sharing their happiness and Halloween costumes to a greater audience. This year, the 2013 Halloween Costume Contest will be named the “WHS […]
Continue Reading →This is Liam Francis Donovan. He is 6 months old and is a little monkey 🙂 he originally was going to be Eeyore, as that is his best friend. However I couldn’t find Eeyore in his size so we decided the next best thing to showcase his silliness would be a monkey! Liam hopes you […]
Continue Reading →We were last minute costume people this year, just found what we already had and dressed up! So this year Miss Emma is a ballerina, not your typical ballerina obviously, that is NOT a ballerina bun for sure! Emma enjoyed trick or treating this year with her sibs and some of her cousin! We only […]
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2012 has been a busy year for Carson! His sister Anastasia was born in January, he finished kindergarten having made good progress on his goals, especially jumping with both feet off the ground, and then spent his summer having adventures. His favorites were a trip to Wildlife Safari in Winston Oregon and attending several county […]
Continue Reading →Ève is now 5 and she’s starting to get all the fun she can have during this special day! Even if she never ask for make-up or princess dress, she enjoyed her make-up very much! She was so quiet, letting her eyes closed and smiling to get some lip gloss! After getting at the daycare, […]
Continue Reading →Faith (5 Years old) loves watching NCIS, especially seeing the Forensic Scientist, Abby Scuito. Faith always has to have her piggy tails.
Continue Reading →Wow just realized how long it has been since I did an Arin update. Here she is on Halloween, she did not Trick or Treat as it was to cold for her so she stayed home with Grandma and Grandpa and handed out candy. Since our last post in Feb. so much has happened. She […]
Continue Reading →For those of you that remember the fun we had last year, this year should be even more fun… Last year, we gave away 4 ipads to our kids. This year, we’re going to shoot for another 4 (maybe 5). Here is how it works: Be certain that you have a child with wolf-hirschhorn syndrome […]
Continue Reading →Carson is six and this is the second year he’s had something in mind when I asked him what he wanted to be for Halloween. He was very sure he wanted to be, as he says, “a reera” and I did my best to make it happen. We visited the zoo for their annual Howloween […]
Continue Reading →Sydnie had a blast this Halloween and did so great. She wasn’t shy like last year, did her best at saying Trick or Treat and was usually the first one to go up to the door. Sydnie loves being around people and is a very friendly and happy little girl. We are so blessed […]
Continue Reading →I love to make the kids Halloween costumes, it’s the only time when I get a little creative. This year I thought that Dylan would make a perfect little bluebird.
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For those of you that remember the Easter picture contest, you are one step ahead. That contest alone drove a ton of awareness to our cause and to this site. We had over 1000 total votes and twice that many visitors looking at our kids in their Eater outfits. A fun contest indeed. Well, that one is no comparison to what is going to take place for Halloween. One of our tremendous fans has stepped up and donated a BRAND NEW iPad2 as a prize to be won for the highest vote getter of the 2011 Halloween picture contest!
Continue Reading →Sorry it took so long, but we finally have a winner of the brand new Vitamix blender! However, you need to watch the video to get the results…
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About 3 years ago, Kendall’s speech therapist (Holly) told us that we needed to get this thing called a Vitamix. We already had a blender, but according to her, we needed a high powered, industrial version so that Kendall could eat all kinds of foods. Supposedly, this thing would puree whatever we wanted Kendall to […]
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For the records, this contest pictures will be archived on this post. Easter Picture of the Year Here is your chance to vote on the 2011 Easter Picture of the Year! The winning entry will get a $50 purchase toward a toy/developmental/therapy/other item of the parents choice for the child. You are limited to one […]
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