New Parents Start Here

If you are a newly diagnosed parent of a child with Wolf-Hirschhorn Syndrome, this is the place to start. Our site has loads of information about everyday people in your shoes. wolfhirschhorn.org is here for parents and family to learn and share experiences, challenges and emotions with others. This is a place where our children thrive. This is a place where you can be you.

If this is your first visit to wolfhirschhorn.org, we recommend that you read the About Wolf-Hirschhorn Syndrome page, but keep in mind that all of our children are different. The worst case scenarios that you may have read on other web sites may not be what you should expect to experience. In fact, there are great stories that exist all around you while you are on this site. None of us that contribute to wolfhirschhorn.org ever expected to be here, but we are. And now we know what it is all about. We believe in our kids, we celebrate their lives, and they give back to us more than we ever expected.

So start now and read Our Stories, but come back to this page often as more resources will be added on a regular basis.

 

61 Responses to New Parents

  1. latonya says:

    my name LaTonya Hogan’s I stay in st.louis Mo I have a 8month old daughter that was born with whs..she only 10lbs ..when the doctors first diagnose her she was 2weeks old I didn’t understand..I’ve blame myself I didn’t smoke nor drink. were did it come from. I just started getting on the internet and started researching bout it heard different story and amazing stories also..I would love to meet and see kids with my daughter syndrome ..

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