National Gathering for 4p-/Wolf Hirschhorn Families
Hello All, I’m not sure if all of the wolfhirschhorn.org community knows about this year’s upcoming National Gathering in Indianapolis, Indiana, for families and friends of kids with 4p-/WHS. Our family has attended this four day long event, sponsored by the 4p- Support Group, ever since we found out our son was diagnosed with 4p-. We have learned that the every-other-year National Gatherings provide a great opportunity to meet other [...]
Continue Reading →Vincent Celebrates Halloween 2011
Happy Halloween Everyone! We had an amazing holiday celebrating Halloween with Vincent, age 8. Vincent dressed as a veterinarian, went Trick or Treating with our next door neighbors and happily marched in the costume parade during his school’s Harvest Moon Festival. Every morning for the past two weeks, Vincent wakes up and asks “Is it Halloween?” He’s a very happy [...]
Continue Reading →Donate to wolfhirschhorn.org
Discussions
Recent Comments
- Tamara on Meet my little treasure Cassidy Renee
- Letty on Meet my little treasure Cassidy Renee
- RANJU NAIR on Meet my beautiful Niece Nayana
- Tamara on What I know…
- M on Meet my little treasure Cassidy Renee
- Janet on Meet my little treasure Cassidy Renee
- Tamara on My angel, Cezara
- aura on Meet my little treasure Cassidy Renee
- aura on Meet my little treasure Cassidy Renee
- Tamara on Meet my little treasure Cassidy Renee
Contribute Your Story
To share your story, create your LOGIN and sign in once you receive your password via email. After logging in, write your story, upload pictures and publish your story! It's that easy. If you would like to comment on our stories, you can comment without creating a login. Each comment is posted once approved. If you need help, please email us.WHS Growth Chart
In 2007, a WHS growth chart was created. Download the Wolf-Hirschhorn Syndrome Growth Chart here.Most Popular Topics
1st Birthday 2011 Easter Birthday Christmas contest results Dentist development Doctor Visits Early Intervention eating family feeding Feeding Tube food Fund Raiser Halloween Halloween 2011 Holiday Hospital introduction IQ kidneys Kidney Transplant kidney ultrasound Magnolia milestones physical therapy pictures School scooting Seizures Siblings Sitting Position Social Media Speech Therapy talking Tethered Spinal Cord Therapy Top 10 List Unborn Child update Vacation video Walking Weight GainSelect Your Story
- Addilynn (2)
- Alexander (8)
- Alexia (2)
- Ali (1)
- Amariah (3)
- Amelia (22)
- Arin Rae (16)
- Ava Lynn (8)
- Ava Ruby (1)
- Blake (3)
- Brett (2)
- Brodie (15)
- Charity (1)
- Claire (3)
- Clover (3)
- Contest (17)
- Corrine (1)
- Corwin (2)
- Dakota (1)
- DeLaney (1)
- Deliany (1)
- Denise (3)
- Devin (3)
- Dylan (13)
- Elijah (4)
- Ellye (3)
- Elsa (6)
- Emma (7)
- Esperanza (1)
- Evan (2)
- Eve (3)
- Evelina (1)
- Evvie (2)
- Featured Stories (15)
- Fiona (2)
- Frank (6)
- Fund Raiser (5)
- General Information (14)
- Grace (5)
- Harry (1)
- Hayden (2)
- Isabella (2)
- Isabella N (6)
- Jake (1)
- James Douglas (2)
- Jon York (1)
- Juliana (2)
- Justin (1)
- Karly (4)
- Karson (2)
- Kaylee (13)
- Kayleen (1)
- Kendall (78)
- Kinga (2)
- Leo (1)
- Liam (4)
- Lists (2)
- Lucy (1)
- Magnolia (5)
- Marley (2)
- Mason (3)
- Matilda (1)
- McKenzie (6)
- Mia Rose (20)
- Nathan (1)
- Nathaniel (19)
- News (2)
- Norrah (18)
- Olivia (1)
- Olivia Grace (5)
- Olivia Stella (1)
- Paisley (1)
- Parent Profile (2)
- Peyton (4)
- Reese (1)
- Region Gatherings (2)
- Renee (1)
- Rheyn (6)
- Riley (6)
- Rochelle (1)
- Ryley (2)
- Sabrina (9)
- Social Media (7)
- Talia (2)
- Talon (1)
- Tanner (13)
- Taylor (9)
- Taylor T (3)
- Teejay (2)
- Tommy (2)
- Tyler James (5)
- Unborn Child (7)
- Uncategorized (58)
- Vincent (1)