Can it really be 2 years since I last posted here? I guess so! Well, a few of you have messaged me asking for a Mia update, so here are a few pics from the past while… Mia turned 5 in January and started school in August last year, where she has been doing great. […]
Greetings WHS Family, As we already made our formal introduction of our Daughter Madison Sergeant, we will proceed to share what life has been like. After 4 days, we left MUSC NICU at 5:30pm with the instructions to take our baby girl the next day to her Pediatrician. At this moment I was anxious, fearful, […]
Continue Reading →Hello everyone, my husband and I are planning on attending the convention in LA in July , does anyone have any info on that if so we would appreciate it so much. Thanks
Continue Reading →Greetings WHS Family, We are new to the Wolf-Hirschhorn Family Organization. Our baby girl, Madison Lilliana Seregant was born on July 19, 2015. She weighed 4lbs, 3.2 ounces and 17 inch long. She is now 7 months and weighs 12 pounds and 24 inch long. Finding out that Madison has been diagnosed with WHS: Week […]
Continue Reading →Liam’s wonderful father added this post to his Facebook account. I thought I would copy and post it here because it was so beautifully written and so heartfelt. We want to share our story with the world, but it has sometimes been very difficult to do so. We are so very blessed to have Liam as our child. He has […]
Continue Reading →Hi all, I cannot believe our Elsa is 4. Years 1, 2 and 3 were so full of medical issues and doctors visits and life coordination. Ever since she turned 3, it seems we’ve fallen into a rhythm of sorts. Don’t get me wrong, we have our tough times. And we still somehow have 2 […]
Continue Reading →Hi Everyone! We are newcomers to the world of Wolf-Hirschhorn. My son Riley just turned 5 months old yesterday! Every day is a new day with our bright little baby. To just give some background. My husband and I are first time parents and did not know until he was 7 weeks old that our […]
Continue Reading →Hello Everyone, Well, here we are at the 9 month mark. This journey has been immense, and it has only just begun. Paige has been a pure blessing. She has saved my life in so many ways. She teaches me more than I would have ever known before. Her needs are so simple and so […]
Continue Reading →My sweet little witch for Halloween!
Continue Reading →Tony is now 12 years old and Halloween is always our special holiday as a family. (His birthday is October 29th) We always make our own costumes and try to theme the whole family around each other. We love Batman so “Batman and Robin” was definitely fitting for us!
Continue Reading →The 2015 Holiday Item is ready for purchase! What is it this year? A newly designed wolfhirschhorn.org notebook. The 80-page orange notebook features this fun design and (literally!) uplifting message: The 2015 Notebook is the annual fundraiser benefiting the children of wolfhirschhorn.org. The cover reads “Going Up, Up, Up” – representing the trajectory of our kids and […]
Continue Reading →Hi Friends, We hope that everyone had a safe and happy Halloween. Wow – here we are. Paige is 6 months old and this is the first update I’ve done since her birth announcement, which was created just after we received the diagnosis. I have so much to say, but I have no idea […]
Continue Reading →We are extending the entry deadline for the Halloween Event to this Sunday, Nov. 15, 11:59 p.m. We want as many kids as possible to get the prize! This year, we will give all kids who enter the event a newly designed WHS notebook (along with crayons and stickers to make it their own). We […]
Continue Reading →See our sweet bunny pop out of the top hat to perform a magic ‘trick’ on Halloween!
Continue Reading →Quinn was Melanie Daniels from Alfred Hitchcock’s “The Birds” this Halloween. She had lots of fun dressing up and looked super cute!
Continue Reading →If you’re thinking of posting to the wolfhirschhorn.org site (for the Halloween Event or otherwise), but are feeling less-than-confident in your computer skills, here’s a quick step-by-step guide. If you have any questions while creating your post, just email me at anitraschulte@gmail.com. Looking forward to reading what you have to say! Posting to www.wolfhirschhorn.org: – […]
Continue Reading →We had a bit of a different Halloween this year. My husband is in Spain for 15 months, so that was on my mind as I was thinking about Wyatt’s costume. I know when I think of Spain, I always think of the running of the bulls. What better way to show our love […]
Continue Reading →Hey everyone, Casen is currently 18 months old and weighs 14.9 lbs. he is strictly g-tube fed and will not eat by mouth. He doesn’t seem to be getting bigger, he is still on infamil for preemies 5 ounces every 3 hours. If anyone has any suggestions on how to get him food besides the […]
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Nathaniel is clearly the unhappy one…unfortunatly this was the only good one I (the puppeteer) have of both he and Noah. Hope everyone had a Super Happy Halloween!
Continue Reading →Ethan was a bat this year for Halloween! I’m a little biased but I have to say he’s much cuter than the bats I’ve come across. We had a great time trick or treating with his older brother and were thankful everyone was healthy for it.
Continue Reading →Elsa was a swan for Halloween this year — quite fitting for her calm, graceful demeanor, I must say! Her costume was a mash up composed of a faux fur hat that my sisters and I wore long ago when playing dress up and a hand-me-down dance recital costume. In a pre-school parade filled with super […]
Continue Reading →Sergio is a strong little soldier. He faces little battles everyday and he always manages to persevere through it. This past year he has overcome a lot of obstacles. Sergio started school for the first time this fall and since the start he has been battling a multitude of germs and viruses that have come […]
Continue Reading →Here’s a pic of Esperanza, age 6, as a lady bug.
Continue Reading →Jayna was garfield. She is 8 yrs old. She loves going trick or treating. But was not happy about the head.
Continue Reading →Discussions
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LittleJohn on
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casen on
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janaelamb on
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Kristen Faccioli Licari on
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Jessie on
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