I’m a little late with Caroline’s 6 month update, and I’m sure I will not get another done for a while due to the holidays and then both kids birthday’s coming up. Things have still been going great! Caroline began rolling over, both ways (front to back and back to front) around 5 months. She [...]
For those of you that know us, the past 2 months have not been good ones. Once Emily turned 6 months old, things seemed to rapidly go downhill. First she got a cold that just wouldn’t go away. Then she had to be hospitalized for 4 days for a silent UTI. She is still fighting [...]
And so it begins! Our 3rd annual Halloween Costume event is officially launched! From day 1, this event has been about sharing our kids to the world in a time of joy for our families and for the kids. Let’s give a hand to all 52 Punkins entered in the 2013 event! As you may [...]
Continue Reading →at times i catch myself sitting and thinking way to much. more so when sitting in the waiting room at the dr’s office or the lab. yesterday for example i saw two different kids. one perfectly fine and singing a long to spongebob’s theme song and another sitting in a wheelchair with a few noticeable [...]
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As we’ve gone along our journey we’ve had the greatest support from family and friends. This is everything to us as we don’t walk alone. We Wear Orange for……… . Phia’s Grandparents, (while supporting another grandchild’s football game) proudly wearing orange. [...]
Continue Reading →We finally have evidence of receptive language. See the post on Isabella’s blog.
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As I go to unpack, another file box, from our recent move. There it is. I pull out the purple (“puhpo”, as Sophia would say) folder. As I open the stuffed folder that holds all the information given to us about Sophia’s diagnosis last year, I’m silent and still. That hard-to-swallow feeling is back in [...]
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Our Annual Halloween Costume Contest was established in 2011 to promote awareness and provide support to children and families diagnosed with Wolf-Hirschhorn Syndrome. Each year, we celebrate their addition to our lives by sharing their happiness and Halloween costumes to a greater audience. This year, the 2013 Halloween Costume Contest will be named the “WHS [...]
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October 5, 2010, a tiny 3lb 7oz 15.75 inch long baby was born at full term. We had received the WHS diagnosis while we were pregnant so we were prepared for her birth. As prepared as you can be for the complete unknown. Today Magnolia is 17lb 13oz and is 31 inches tall. Here is [...]
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Hi all I’m new to this site and just wanted to introduce myself and my two boys. I’m a young mom with two boys aged 22 months & 10 months. During my first pregnancy, they were worried that my baby wasn’t growing properly, I had multiple growth scans and at 24 weeks they told me my [...]
Continue Reading →where does someone begin with this. I would say it all started maybe sometime around the summer of last year. I was sent to the hospital and found out I had a miscarriage to a pregnancy I didn’t even know about. that day I was told I couldn’t have kids or else I wouldn’t survive. [...]
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Throughout Vicki’s recent pregnancy we were frequently asked by friends, family and colleagues whether Mia was looking forward to becoming a big sister. In truth, it was hard for us to tell one way or another – at most she seemed indifferent to the whole affair and, despite us talking to her about the imminent [...]
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Well…..Our girl is 1! Time is flying by and I try to remind myself to enjoy the here and now and not worry about the what will be’s. We have been battling a fever for 8 days now and it has been a bit rough, but this too shall pass. I worried that she might [...]
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I’ve been contemplating on whether or not I wanted to write this post for several weeks. I actually typed it up on my computer thinking that I could trick my sub-conscious into being satisfied with the fact that I had at least written down what I was feeling, but that didn’t work. So before I [...]
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We wanted to share some updates on Elsa — as she passes the 21 month mark: Prevacid: After being told by many a doctor that Elsa is “just a pukey kid,” last week she went on Prevacid for reflux. It has already made a remarkable difference. Normally, a cold leads to 3 or more pukes [...]
Continue Reading →Dear WHS Family, Our stories are mirrors of all our journeys, so when we jumped into this amazing opportunity to share ours, we might as well be also telling yours. Read about it in the feature article entitled “Special Needs, Special Love” in the WorldUrbanista webizine. Love, Isabella and the Catiis Family To keep [...]
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My little Emily Rose turned 6 months old last week! And what a 6 months it’s been! So many ups and downs, highs and lows….sigh. Overall, though, I couldn’t be more pleased with how my little mama is doing. Eating: Eating is an ongoing issue for Emily. Every feeding is different and there is often no [...]
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Hi everyone! It has been a while since I updated Sabrina’s progress. 2013 has been a big year for us and Sabrina has been very healthy and happy. She is still unable to crawl, walk, stand or talk but she is more interactive than ever. We like to have “conversations” and we “sing duets” together. [...]
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Wow, writing that title seems a little bizarre. Is my little girl 4 months already? On one hand it feels like we just brought her home from the hospital, but on the other it feels like we have been to see so many different doctors and specialists in these first 4 months that she should [...]
Continue Reading →This is the story of our daughter Charlotte Ellen “Charlie” who was born September 24, 2012. She is our fourth child and is such an amazing and beautiful baby girl. She was 5lbs11oz when she entered this world and that should have tipped us off. All of her siblings were 9-10 lbs and here we [...]
Continue Reading →Hi everyone! My little Emily Rose is 6 months old today….I can hardly believe that it’s been 6 months already. I’m thinking that I will do a separate post to talk more about that. For now, I just wanted to share with you a short video of her “talking.” Sometime within the past month, she has [...]
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Shadyn had a rough start but is doing much better now. She is now 19 months old she is 12lbs 5oz. We have a nutritionist that comes once a month to make sure she is still on track with gaining and growing. She gets speech therapy twice a week and pt once a week. We [...]
Continue Reading →Cassidy is going to be 15 month on September 5, 2013. And she can finally sit up! A few days ago, I was doing my daily exercise and massage routine with her (the way our PT taught me), and then gradually started feeling this gust of frustration and depression blowing upon me, followed by a [...]
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I have been talking to many of you for the better part of a year now and I have come to the realization that I have not yet shared Liam’s story on here. So, here we go. I found out I was pregnant in August 2011. A month later, I had some bleeding and went [...]
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It is official, Nathaniel can sit!!! He’s always made it known that he wants to sit by rocking/doing a sit up and we catch him and hold him to sit. But one night about a week ago, we were watching the original Superman movie in bed and he was trying to sit up so I [...]
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Today we met with the specialist and physical therapist from our local Early Intervention office to have Caroline’s evaluation and get their recommendations on her development. I couldn’t have been more pleased with how she did. She just made 3 months yesterday and she is doing so much, although the PT says she is at [...]
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