The 2015 Holiday Item is ready for purchase! What is it this year? A newly designed wolfhirschhorn.org notebook. The 80-page orange notebook features this fun design and (literally!) uplifting message: The 2015 Notebook is the annual fundraiser benefiting the children of wolfhirschhorn.org. The cover reads “Going Up, Up, Up” – representing the trajectory of our kids and […]

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  Hi Friends, We hope that everyone had a safe and happy Halloween.  Wow – here we are.  Paige is 6 months old and this is the first update I’ve done since her birth announcement, which was created just after we received the diagnosis.  I have so much to say, but I have no idea […]

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We are extending the entry deadline for the Halloween Event to this Sunday, Nov. 15, 11:59 p.m. We want as many kids as possible to get the prize! This year, we will give all kids who enter the event a newly designed WHS notebook (along with crayons and stickers to make it their own). We […]

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Abracadabra DeLaney!

November 8, 2015 by

See our sweet bunny pop out of the top hat to perform a magic ‘trick’ on Halloween!  

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Quinn ~ Halloween 2015

November 4, 2015 by

Quinn was Melanie Daniels from Alfred Hitchcock’s “The Birds” this Halloween.  She had lots of fun dressing up and looked super cute!  

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If you’re thinking of posting to the wolfhirschhorn.org site (for the Halloween Event or otherwise), but are feeling less-than-confident in your computer skills, here’s a quick step-by-step guide. If you have any questions while creating your post, just email me at anitraschulte@gmail.com. Looking forward to reading what you have to say! Posting to www.wolfhirschhorn.org: – […]

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Wyatt the Matador

November 3, 2015 by

We had a bit of a different Halloween this year.  My husband is in Spain for 15 months,  so that was on my mind as I was thinking about Wyatt’s costume.   I know when I think of Spain,  I always think of the running of the bulls.  What better way to show our love […]

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Baby Casen 2015

November 2, 2015 by

Hey everyone, Casen is currently 18 months old and weighs 14.9 lbs. he is strictly g-tube fed and will not eat by mouth. He doesn’t seem to be getting bigger, he is still on infamil for preemies 5 ounces every 3 hours. If anyone has any suggestions on how to get him food besides the […]

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My puppets!!

November 2, 2015 by

Nathaniel is clearly the unhappy one…unfortunatly this was the only good one I (the puppeteer) have of both he and Noah. Hope everyone had a Super Happy Halloween!

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Ethan: Halloween 2015

November 2, 2015 by

Ethan was a bat this year for Halloween!  I’m a little biased but I have to say he’s much cuter than the bats I’ve come across.  We had a great time trick or treating with his older brother and were thankful everyone was healthy for it.

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Elsa Halloween 2015

November 1, 2015 by

Elsa was a swan for Halloween this year — quite fitting for her calm, graceful demeanor, I must say! Her costume was a mash up composed of a faux fur hat that my sisters and I wore long ago when playing dress up and a hand-me-down dance recital costume. In a pre-school parade filled with super […]

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Sergio – Halloween 2015

November 1, 2015 by

Sergio is a strong little soldier. He faces little battles everyday and he always manages to persevere through it. This past year he has overcome a lot of obstacles. Sergio started school for the first time this fall and since the start he has been battling a multitude of germs and viruses that have come […]

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It’s our 4th year celebrating WHS Awareness, with the world, on this Halloween Event!  Our Lil’ Mermaid, her character shimmers so bright.  She hit land and made a splash, with her fun size love.  Last few years we captured her saying, “Trick or Treat” and it is sweeter than Halloween candy.  She believes you get […]

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Here’s a pic of Esperanza, age 6, as a lady bug.

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Jayna Halloween 2015

October 30, 2015 by

Jayna was garfield. She is 8 yrs old. She loves going trick or treating. But was not happy about the head.

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Halloween Event 2015

October 27, 2015 by

                Halloween is just a few days away, and many of you are surely getting your child’s costume prepped and ready to go. In addition to hitting your school parade and neighborhood trick-or-treat circuit, be sure to participate in our annual WHS Halloween Costume Event, right here at […]

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Elsa: Reading with Switch

October 8, 2015 by

Elsa has had switches to use for communication for quite some time, but I don’t think I’ve ever posted how we use them. Here, we’re reading a book made by her teacher at preschool. It’s fashioned after Brown Bear, Brown Bear. But instead of the flow of colors and animals, it features real pictures of […]

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Caught off guard…

October 7, 2015 by

Well, its been a little while since I’ve posted an update about Nathaniel. He recently had a Nasal tip reconstruction and the right nare had to have bone shaved since it was completely obstructed. Other than that, he’s been doing very well. I was a little saddened last night though and it’s carried over today. […]

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Elsa: Therapy at the Park

August 17, 2015 by

This summer, we went to a new neighborhood park with lots of nice shiny equipment, including a sweet child-sized black gloss finished picnic table. Eager to try out Elsa’s more independent sitting skills, I put her on her bottom, on the seat facing out onto the concrete pavement below. Perhaps you can guess what happened next. I looked […]

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Elsa: Playtime at home

July 16, 2015 by

There is nothing terribly momentous about this video, but I wanted to share. This is just Elsa playing with one of her favorite toys in our kitchen… a toy that her sister stole from our speech therapist’s toy bag, a common occurrence, unfortunately. (Why are their toys so much cooler than ours?? Even the oldies […]

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This could be considered an odd or unfathomable question to some, but I’m curious if there are any WHS children who suffer from epilepsy/organ failure who have been on a trial/or even using CBD oils as a treatment? We live in Texas and CBD oil is now considered legal. I’ve read that the CBD is extracted […]

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As you start planning for your summer holiday, add one more thing to your to-do list: Update your information with wolfhirschhorn.org. This summer, we are updating the wolfhirschhorn.org Child Locations database, and we need your help. Here’s why it matters, and why now is the time for a refresh: When you received your child’s diagnosis, […]

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Many times, as I encounter (or Sophia encounters) another friend, they often declare how she has touched their soul and I’m reminded of the miracle in Sophia’s giving heart. Our “new” friend will quickly tell me how lovely and amazing she is and how she gives her all, in all she does. I smile and […]

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Baby casen 2015

May 21, 2015 by

Hello everyone we just wanted to give an update on baby casen , he resently had a his big 1 birthday!!! Casen has been doing very well, he has only had two small seizures since December , he’s doing very well on keppra. Casen is smiling , grabing at toys, he is such a happy […]

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Stronger is Happier

May 16, 2015 by

I’m going to share here, because here is one of the few places in our world where honesty still lives.   I have been angry.  Anger I didn’t know still existed.  With the exception of Christmas and Easter, I haven’t been to church in over a year.  I have been angry with God and the […]

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