Currently viewing the tag: "milestones"

About this time last year, I made quite an extensive list of the developmental milestones that Kendall had reached at the ripe age of 5. As we well know, all of our children are quite different and each one has their own way of being who they are. After reviewing this list again 12 months […]

Continue Reading

As part of the history in tracking Wolf-Hirschhorn Syndrome kids and their accomplishments, I wanted to make it a point to document some things about Kendall for us to look back on at some point, but also to give other parents an idea of what kids are doing at certain ages. We realize that all […]

Continue Reading

Mia’s March Milestones

March 19, 2012 by

Mia turned one on Jan 17th. We threw a party and had a really fun day with all our friends and family, but a combination of the disruption to Mia’s routine on top of an ongoing respiratory virus resulted in a cluster of seizures over the following two days and yet another hospital admission. Such […]

Continue Reading

She is Three!

July 28, 2011 by

It has been several months (OK, five) since my last update on Norrah. In the course of the last 5 months our family has made some major changes and so has Norrah. Norrah is now 3! Her third year of life was an eventful one filled with so many new and amazing accomplishments. Norrah is […]

Continue Reading

It’s Official

February 25, 2011 by

Norrah has been walking with assistance for quite some time.  Honestly, some days I thought she might ALWAYS need some type of assistance, not for her physical body, but for her EGO! She seemed to be so wary of taking steps on her own, even though we could sometimes coax her or trick her into […]

Continue Reading

Happy New Year

January 1, 2011 by

It seems that every year on New Year’s Eve Norrah declares to our family that she is indeed an overcomer and that we have lots to look forward to in the new year. Last year (12/31/2009) she surprised us by deciding to stand for the first time ever. Assisted standing was her New Year’s Eve […]

Continue Reading
Continue Reading


August 19, 2010 by

Check out the most recent videos of sweet Norrah! She is walking in her walker (without assistance) and saying lots of new words these days. We are in awe – as always.

Continue Reading

On Her Way

July 13, 2010 by

Norrah is learning to walk. Though she has had her walker for many months, she has usually had a love-hate relationship with it. She loves to look at it, pull up on it and play with it. She hates to “do work!” in it. That is, until recently. The video does not do her justice, […]

Continue Reading

Norrah Videos

May 17, 2010 by

Check out the videos below.  They include clips of Norrah reaching milestones and living life.  She is our littlest miracle and I cannot believe that she will be two in less than two months! *Please disregard the poor lighting, the crumbs on the floor, dirty clothes in the bathroom and the fact that my kids […]

Continue Reading

Fix You

April 28, 2010 by

I used to think the song “Fix You” was written just for me about Mia because I thought it was my responsibility to repair the damaged life she had been given. “Fix You” When you try your best, but you don’t succeed When you get what you want, but not what you need When you […]

Continue Reading

It’s all good…

April 20, 2010 by

Kaylee hit 3 months this past week, and she is doing exceptionally well. The Physical Therapist came today and told me that she was hitting all of the milestones that were expected of her at this age– she is holding up her head when on her stomach; tracking an object smoothly from side to side, […]

Continue Reading

Yea… the title says it all.  This is a post where I brag about Norrah.  On our personal blog and here on the WHS blog I haven’t really said much lately (SO UNLIKE ME, I KNOW).  We are having some health issues in our family that have NOTHING to do with Norrah or WHS and […]

Continue Reading