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"Fund Raiser"
Thank you SO much to all who have ordered the Superhero Story Book, our 2019 Valentine’s Day Fundraiser. You are superstar supporters, and we appreciate you and all you do for our kids! If you haven’t ordered yet, don’t worry… there’s still time! Orders are due by EOD this Friday, Jan. 25. The Superhero Story Book […]
Continue Reading →Love is our children’s greatest superpower! That’s why we’re so excited to launch our 2019 Valentine’s Day Fundraiser: The Superhero Story Book! This colorful, inspiring paperback photo book features 36 superheroes – children with Wolf-Hirschhorn Syndrome, who wow us every day with their bravery and heart. Thank you to the families who shared pictures of their awesome kiddos! […]
Continue Reading →Family. Joy. Hope. These are the very best things about the holidays – and also the things that unite us, as a community linked by a shared diagnosis and similar path through life. One thing that brings tremendous joy and hope to many of us is getting to know other children with WHS. Simply seeing another […]
Continue Reading →As family and friends of children and adults with WHS, we are all on the same team. And through wolfhirschhorn.org, we can support each other and cheer each other on. In this spirit, we are announcing the 2017 holiday fundraiser item is… a Team WHS hat! The stories we share here at wolfhirschhorn.org are […]
Continue Reading →The adult-sized “Real Stories. Real Power.” T-shirts are now ready! The shirts are available for 8 days through this Bonfire campaign. Buy yours today and help us spread awareness of WHS! https://www.bonfire.com/wolfhirschhorn-adult-tee/
Continue Reading →We’re excited to share a fun T-shirt design for Holiday 2016! This new wolfhirschhorn.org T-shirt features a superhero theme because it can’t be denied: Our kids are real-life superheroes, who everyday face herculean obstacles and defy the odds. The shirt reads “Real Stories. Real Power.” That’s because here at wolfhirschhorn.org, we believe there is real […]
Continue Reading →Hope you all had a wonderful holiday season. On behalf of the wolfhirschhorn.org community, I’d like to send a HUGE thank you to everyone who participated in the 2014 Halloween Event and Holiday Fundraiser… For posting pics of your kiddos in their costumes, purchasing tote bags, and sharing the posts with your social networks, families […]
Continue Reading →Hello to all. My church recently had a craft show and while there I talked to a lady named Mary Cifone who makes these awesome bunting bags for babies and I wanted one for Arin but with Arin’s feeding tube it would not work the way it was so in talking with Mary and explaining the […]
Continue Reading →Last month on July 15th, we gathered with 40 other wine connoisseurs at Lynfred Winery in Roselle, IL to raise funds for families that struggle to give WHS children the absolute best care possible.
Continue Reading →Most of my life, I have been a selfish person that has always wondered what’s in it for me. If I couldn’t benefit, then my interest level was non-existent. I was the guy that never felt the need to drop extra change in the bucket or to give to a cause. It’s just not who I […]
Continue Reading →hi im looking to set up a charity for my daughter just to raise awareness for such a special syndrom, i dont think its very fair that alot of other syndromes are well known about but this very special syndrome is left in the dark. Ive not long lost my daughter she was pretty healthy […]
Continue Reading →hi my name is nikki and im from wales in the uk. I am looking for advice on how to fundraise or set up a small charity in memory of my beautiful niece who became an angel in january. she was diagnosed with whs not long after she was born but proved to be a […]
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