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Kidney Transplant Archives - wolfhirschhorn.org
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How to Knock Down a Brick Wall according to ASK.com: “For easy demolition of a brick wall, first there is a need to organize your demolition equipment.” On January 12, 2012, I shared my post “Brick Walls” with my Wolf-Hirschhorn Syndrome family who then shared it with the world. As a community, we organized our […]

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As a group, we need to stand up and applaud each other, thank our families, and be proud of our accomplishments. A bubble was building and it finally popped. We all know the story now and if you don’t, just check out this link: Brick Walls. On Friday, January 13, 2012, a historical event occurred […]

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Brick Walls

January 12, 2012 by

I put my hand up. “Stop talking for a minute. Did you just say that Amelia shouldn’t have the transplant done because she is mentally retarded. I am confused. Did you really just say that?”

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Just the facts for today: We saw nephrology and Mia is dong well. We asked the important question, “How long do we have until she needs a transplant?” Response: About six months to a year. We were happy with this news! We then met with head of transplant team. It did not go as well. […]

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     I have asked on the list serve if any one could help with any information about kidney diseases and transplants, and although many people offered support, no one responded about actually going through a transplant. So I thought I would blog about our experiences to help others. And as usual, I am being selfish […]

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