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Riley Archives - wolfhirschhorn.org
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Riley inspired GREATNESS

December 2, 2011 by

Since we moved to Florida, Riley has started receiving PT and ST through the pediatric clinic at our local ARC. Our branch includes programs for both adults and children with developmental disabilities. For adults, they run group homes, a day program, as well as work sites. And for kids, they run a pediatric therapy clinic. […]

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We are going to exclude Riley from the picture contest (she has an ipad already) but thought we would share a few pictures of our sweet girl. And our big news . . . Riley has started walking!

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Miss Riley Update

January 9, 2011 by

Thought I would add an update on our little Riley Roo. Riley is 22 months and doing amazing. She is crawling everywhere and walking with her walker on her own. She responds to so many commands and can follow the actions to many songs.

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Wolf-Hirschhorn parents, family members, doctors and therapists are rising up and I LIKE IT.  The crowd is getting motivated to produce change and that makes my little heart go “pitter-patter” with excitement.  We are no longer willing to let outdated scientific studies with gloomy photographs of emotionless kids in corners, poor prognosis and all-encompassing phrases like […]

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Reflux issues

April 9, 2010 by

I’m hoping another parent out there can help us out with this. Here is a brief background. Riley has had reflux issues since around 5-6 weeks after birth. Some arching, a little pain, and occasional vomiting. She would have a week where she would vomit once a day and then go a month or two […]

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Here’s Riley

March 12, 2010 by

Riley is our little 12 month old WHS angel. She is doing really well. She was 4 lbs, 5 oz and 16 3/4 in at birth. Now at 1 year, she is up to 13 lbs, 7 oz and 24 in, thanks to the help of her g-tube. Riley’s medical concerns include an ASD, strabismus […]

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