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In 2007, there was nowhere to go. A brief search on the internet brought back fear and pain. For many years, The Physicians’ Guide to Rare Diseases was the primary source of information to families searching for answers. Every geneticist reiterated the same message: your child won’t make it. But now we have the truth. […]
Continue Reading →Back a few months, I signed up some additional help with the wolfhirschhorn.org-1-man-show by adding Ross Lennox. To this day, his existence continues to be irreplaceable to all of us in ways that nobody will ever notice. I can’t thank him enough for all that he has done to keep the site live, up to […]
Continue Reading →Hey everyone! I have been meaning to talk about the progression of this web site and the WHS.org community over the past 3 months but haven’t found the time to spread the news. I am excited to announce that Ross Lennox, father of Mia is “officially” an integral part of wolfhirschhorn.org. Over the past year, […]
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