Kendall Update 2015
It’s been almost exactly a year since I last posted an article about Kendall on the Wolf Hirshhorn website. So much has happened over the past 12 months and I feel guilty for not continuing to write articles about Kendall and her journey. Kendall has done so much in the past year. She has fully transitioned from […]
Continue Reading →You are Right, It’s Not Fair
These six words are often stated in this household. Unfortunately, it’s just the way things are. I don’t like telling my children that it’s not fair, but they will have to deal with it – especially when it comes to parenting and trying to be consistent with each and every child. However, it happens to […]
Continue Reading →Appreciating the Special Moments of a Special Needs Child
Last week I had a moment that caught me by surprise; one of those times where your mind goes completely blank, the scenery around you freezes and a single point of focus consumes your every thought. Every Wednesday I try to take the kids over to my Mom’s house for dinner to hang out with […]
Continue Reading →Kendall Turning 6: Vocabulary Abounds
About this time last year, I made quite an extensive list of the developmental milestones that Kendall had reached at the ripe age of 5. As we well know, all of our children are quite different and each one has their own way of being who they are. After reviewing this list again 12 months […]
Continue Reading →The Sibling Effect Part 2: The Other Point of View
Some time ago, I wrote an article about our children and what siblings mean to them across all phases of their growth and development. There is no question that today, Kendall has developed more quickly due to the presence and interaction that her siblings provide her on a daily basis. Some of the activity she’s […]
Continue Reading →Kendall 5 Year Milestones
As part of the history in tracking Wolf-Hirschhorn Syndrome kids and their accomplishments, I wanted to make it a point to document some things about Kendall for us to look back on at some point, but also to give other parents an idea of what kids are doing at certain ages. We realize that all […]
Continue Reading →Widening of the Gap and the effect on Mainstreaming
It’s been a while since I’ve written and I’ve got a few things that have been on my mind. The first one pertains to what I refer to as the “widening of the gap” and the second has to do with Kendall turning 5 (7/18/12). I’ll address Kendall and her accomplishments to date in my […]
Continue Reading →Kendall and Elsa: Past and Future
In early April, the Schulte’s and O’Brien’s arranged a meet up to visit and get to know each other; but more importantly, get to meet Kendall and Elsa. We decided to collectively write a post about our feelings of the past and future. Here is our story… Looking forward Meeting Kendall, for us, was like […]
Continue Reading →Kendall at 1 month: Looking back nearly 5 years
I was sifting through video and image files and randomly clicked on a date that had a few videos that I completely forgot about. On 8/17/07 (my birthday), I video taped Kendall for no particular reason. They are very short videos, but thought that it would be good for other new mothers to see her […]
Continue Reading →How-To: Changing a Mic-Key Button
One of the most beneficial things we can do as a group is help each other on tips and tricks around being a parent of a wolf-hirschhorn child. For us, one of the scariest things that we faced with Kendall is wondering how to effectively care for her feeding tube and Mic-key button. So, we […]
Continue Reading →Simplicity Can’t be Understated
I’ve pondered this particular topic for quite some time and I always wondered how politically correct I would be in broaching on such an article. However, it came to light today so I decided to talk about it. We have 3 little ones in the house under 6 years old, with Kendall being the middle […]
Continue Reading →Practical Jokes are Funny
I love practical jokes. So does Kendall and she likes them even more when they are played on her.
Continue Reading →Look out True Blood, Here Comes Kendall
We decided that our three little ones suck the lives out of us, so what better for them to be than Vampires for Halloween? Kendall is all decked out in her blood draining outfit.
Continue Reading →Kendall is Pretty Smart!
It’s amazing how much our kids can do if we just test them. Every day I ask Kendall to do something new and she almost always knows what I’m talking about.
Continue Reading →Kendall’s Growing Up
Nothing really new, but a few neat pictures of Kendall. We went for a bike ride Downtown Chicago last weekend and I caught some pictures of Kendall and after looking at them, I realized that she’s starting to turn into a little girl. She’s no longer the baby or the toddler anymore. It’s both sad […]
Continue Reading →Swimming is Great Therapy
In our subdivision, we have this awesome pool and we’ve rigged up enough flotation devices that allow her to roam free around the pool. She can get her bicycle kicks going and has figured out how to maneuver herself in whatever direction she chooses. We’re hoping this gets her running pretty soon. We’ll see!
Continue Reading →Kendall Turns 4
Today, Kendall turned 4 years old. Clearly, we had no idea what we in for on July 18th, 2007. We can say with complete conviction that things are so much easier now than they have been since she’s been born.
Continue Reading →She’s a Dancer, a Laugher and a Snapper
I’ve been delinquent in posting the newest videos of Kendall and am finally getting to it. She continues to dance every time she hears music. She also gets into these moods where all she wants to do is laugh. Oh yeah, she also figured out how to snap her fingers!
Continue Reading →“Is Cailen smarter than Kendall?”
As we all know, kids are really inquisitive and perceptive. They are also very honest and pure; always asking interesting questions. My son, Carsen, asked an interesting question today: “is Cailen smarter than Kendall?”. Cathy and I looked at each other and started laughing. No idea why we found this funny, but I guess it […]
Continue Reading →10 More Words by Kendall…
What seemed like a long time ago was just a few months. I posted the Top 10 Words and since then, Kendall has picked up a few more. Slowly, but surely we’re getting there with her speech. We still have a number of sounds to work on, but overall, she is responding well to verbal communications.
Continue Reading →Easter with Kendall
Kendall has already started understanding the whole concept of “hoarding” and gathering things (mostly household utensils and Tupperware), so this year we hoped that the easter hunting would click in. Although she didn’t quite get to any of the hidden items before her siblings, she thought it would be easier to just take what they collected and call it her own.
Continue Reading →If all else fails, try Gravity
Kendall can walk, and has been working on her brisk walk as of late. She can’t quite run, but we put her to the test this evening by letting gravity take its course. Our backyard slopes at quite a step angle, so we gave her a nudge and watched her go. For developmental check marks, we can now say that she runs…downhill!
Continue Reading →Princesses come in all Shapes and Sizes
Maybe it’s not the case that Kendall isn’t quite understanding the whole princess concept yet, but we can enjoy it from our end on occasion. For instance, just the other day, Cathy suited up Kendall in a nice new outfit that her little sister got for her birthday.
Continue Reading →Kendall is Ready for the World
She digs getting all dressed up and ready to hit the road. In this video, she showed us how ready she is to get out on her own.
Continue Reading →The Seizure
Up to this point, we’ve been fairly fortunate with Kendall and seizures. In fact, her seizure activity had been limited to a slight loss of balance and a few seconds of regaining her whereabouts. At least until last weekend…
Continue Reading →Mary Had a Little Lamb
At any given moment, Kendall breaks out into singing a few verses of this well known legendary song.
Continue Reading →The Top 10 Words as Spoken by a 3 Year Old WHS Girl
Three years ago, I wondered if my daughter Kendall would talk at all. Well, she talks, and actually, it’s hard to get her to be quiet! Some of what she says doesn’t make much sense, but some of what she says has quite a bit of meaning. At the ripe age of 3 1/2, here are the Top 10 words she uses on a daily basis:
Continue Reading →Kendall being Kendall
Just a few pictures for an update. Kendall has shown that she is actually interested in food these days. At meal times, she climbs up into her highchair and gets herself ready for the big meal. Now all she needs to do is figure out how to chew… And, based on an earlier post of […]
Continue Reading →Kendall’s First School Play
Well, Kendall has her first acting gig under her belt. In these 2 videos, she really does her part in participating. We’re so proud of her!
Continue Reading →The Diva Energizer Bunny
If you wind her up, she keeps on ticking…
Continue Reading →Donate to wolfhirschhorn.org
subscribe
Contribute Your Story
To share your story, create your LOGIN and sign in once you receive your password via email. After logging in, write your story, upload pictures and publish your story! It's that easy. If you would like to comment on our stories, you can comment without creating a login. Each comment is posted once approved. If you need help, please email us.WHS Growth Chart
In 2007, a WHS growth chart was created. Download the Wolf-Hirschhorn Syndrome Growth Chart here.Most Popular Topics
1st Birthday 2011 Easter Birthday contest results Dentist development Doctor Visits Early Intervention eating family feeding Feeding Tube food Fund Raiser Halloween Halloween 2011 Halloween Contest Holiday Hospital introduction IQ Kidney Transplant kidney ultrasound Magnolia milestones Nayana Parent Profile physical therapy pictures School scooting Seizures Siblings Sitting Position Social Media Special Needs Speech Therapy talking Therapy Top 10 List Unborn Child update video Walking Weight GainSelect Your Story
- Addilynn (2)
- Alexander (9)
- Alexia (2)
- Ali (1)
- Amelia (23)
- Ansel (1)
- Arianna (2)
- Arin Rae (16)
- Ava Lynn (8)
- Ava Ruby (1)
- Bethany (2)
- Blake (3)
- Brett (2)
- Brodie (15)
- Caroline (9)
- Casen (1)
- Cassidy Renee (2)
- Charity (1)
- Charlotte Ellen (1)
- Claire (3)
- Clover (3)
- Contest (19)
- Corrine (1)
- Corwin (2)
- Dakota (1)
- DeLaney (1)
- Deliany (1)
- Denise (3)
- Devin (3)
- Dylan (16)
- Elijah (4)
- Ellye (3)
- Elsa (32)
- Emily Rose (5)
- Emma (7)
- Esme (3)
- Esperanza (2)
- Evan (2)
- Eve (3)
- Evelina (1)
- Evvie (2)
- Featured Stories (14)
- Fiona (4)
- Frank (6)
- Fund Raiser (13)
- Garner (1)
- General Information (23)
- Giveaway (3)
- Grace (5)
- Halloween (28)
- Harry (1)
- Hayden (2)
- Isabella (4)
- Isabella N (6)
- Jaap (1)
- Jada (2)
- Jake (1)
- James Douglas (2)
- Jon York (1)
- Joseph (1)
- Juliana (2)
- Justin (1)
- Karly (4)
- Karson (2)
- Kaylee (13)
- Kayleen (1)
- Kendall (82)
- Kinga (2)
- Leo (2)
- Liam (7)
- Liam John (1)
- Lisa (3)
- Lists (2)
- Lucy (1)
- Madison (7)
- Magnolia (7)
- Marley (2)
- Marshall (1)
- Mason (3)
- Matilda (1)
- McKenzie (6)
- Mia Rose (27)
- Natalie (1)
- Nathan (1)
- Nathaniel (28)
- Nayana (3)
- News (3)
- Norrah (18)
- Olivia (1)
- Olivia Grace (6)
- Olivia Stella (1)
- Paisley (1)
- Parent Profile (2)
- Peyton (4)
- Quinn (2)
- Reese (1)
- Region Gatherings (2)
- Renee (1)
- Rheyn (6)
- Riley (6)
- Rochelle (3)
- Ryley (2)
- Sabrina (10)
- Savannah (1)
- Sergio (2)
- Shadyn (1)
- Social Media (10)
- Sophia (6)
- Talia (2)
- Talon (1)
- Tanner (13)
- Taylor (10)
- Taylor T (3)
- Teejay (4)
- Tommy (2)
- Tyler James (5)
- Tyler Jay (1)
- Unborn Child (7)
- Uncategorized (128)
- Vincent (1)
Google Ads 1
Google Ads 2
Google Ads 3