Currently viewing the tag: "family"

I’ve pondered this particular topic for quite some time and I always wondered how politically correct I would be in broaching on such an article. However, it came to light today so I decided to talk about it. We have 3 little ones in the house under 6 years old, with Kendall being the middle [...]

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As the mother of a child with Wolf-Hirschhorn Syndrome, I experienced most of the emotions possible in parenting Craig over a 25-year period, including shock, sadness, confusion, fear, crisis, overwhelming love, grief, anguish, numbing fatigue, anger, joy, pride–the list goes on and on. When he was three, I wrote the letter to Exceptional Parent Magazine [...]

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Wolf-Hirschhorn parents, family members, doctors and therapists are rising up and I LIKE IT.  The crowd is getting motivated to produce change and that makes my little heart go “pitter-patter” with excitement.  We are no longer willing to let outdated scientific studies with gloomy photographs of emotionless kids in corners, poor prognosis and all-encompassing phrases like [...]

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