Currently viewing the tag: "family"

Hello Everyone it’s  been awhile since my last post and I apologize for that I was just very busy lately. But anyway I’m back again with more info and more pictures of Nayana. Well I’m so happy and proud that my niece celebrated her first birthday on May 23 rd this year! She has grown […]

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I’ve pondered this particular topic for quite some time and I always wondered how politically correct I would be in broaching on such an article. However, it came to light today so I decided to talk about it. We have 3 little ones in the house under 6 years old, with Kendall being the middle […]

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As the mother of a child with Wolf-Hirschhorn Syndrome, I experienced most of the emotions possible in parenting Craig over a 25-year period, including shock, sadness, confusion, fear, crisis, overwhelming love, grief, anguish, numbing fatigue, anger, joy, pride–the list goes on and on. When he was three, I wrote the letter to Exceptional Parent Magazine […]

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Wolf-Hirschhorn parents, family members, doctors and therapists are rising up and I LIKE IT.  The crowd is getting motivated to produce change and that makes my little heart go “pitter-patter” with excitement.  We are no longer willing to let outdated scientific studies with gloomy photographs of emotionless kids in corners, poor prognosis and all-encompassing phrases like […]

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