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I remember when Alexander was young. I’m going to be brutally honest about my arrogance. He was so young and we had years and years to prove people wrong. The one thing I know for sure Children with WolfHirschhorn Syndrome will fight ….. they are fighters. I pushed him to eat orally. He fed from [...]
Continue Reading →Dear Parents, I’m writing you this letter even as Alexander wiggles across the floor. You see, I am you. Sometimes it is hard for all of us. Sometimes – we all wonder if we are doing what is right for our children. Sometimes – we all wonder if our children are “Falling Behind.” [...]
Continue Reading →***A few disclaimers: This post was originally posted on our personal blog: http://www.alittlesomethingforme.com – All of the links (with the exception of the 4Paws for Ability) go back to previous posts in our personal blog.*** **We are excited to travel this road with service dogs. The literature on seizure dogs is still new, but [...]
Continue Reading →As the holiday season approaches, I know that many parents struggle. The gift giving experience can be disheartening. Other children grow into new stages quicker than parents can keep up. One minute they are stacking blocks and the next minute they are playing Barbie / GI Joe kingdom. The truth of the matter is this. [...]
Continue Reading →This year we decided to all be cowboys / cowgirls. Check out our photos of Alexander and the twins. The kids loved it. I loved it. What an awesome contest Kristen
Continue Reading →Kevin. Thank you for this site. I want to take a minute to express my gratitude to you for this site. I’m also going to lay it all out on the line. 1. When we found out about Alexander’s syndrome – we did our research. Just as everyone else, we scoured the internet. All we [...]
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Please remember that life can change in an instant. There are people already in your life that you love unconditionally, and you would go to the ends of the Earth for them…. don’t worry – you will feel that way about this baby also.
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There is a bond that is shared between families with children with rare syndromes. It is this indescribable thing. The bond is especially strong between the mothers, but really it is a family thing. They are the people who pull you through the darkest hours. They are the people who have been there / done [...]
Continue Reading →Alexander’s birthday is quickly approaching. I felt I needed to record my feelings now… a year later. I was going to wait until Alexander’s birthday to share this… but I can’t.
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