Mia – Autumn 2012
It has been a few months since I last posted. So here’s a quick update on how we are and where we’ve been… Mia will be 21 months old in a week or so, she weighs about 14 lb and is generally doing great. We did have to spend a night in Intensive Care last [...]
Continue Reading →Mia’s March Milestones
Mia turned one on Jan 17th. We threw a party and had a really fun day with all our friends and family, but a combination of the disruption to Mia’s routine on top of an ongoing respiratory virus resulted in a cluster of seizures over the following two days and yet another hospital admission. Such [...]
Continue Reading →Can it really be 9 months already?!
Hi everyone. I haven’t been checking the site so much lately but have really enjoyed catching up with all your stories just now. It has been a busy but fun few months for us, so I’ll try and fill you in with some of what we’ve been up to… Mia will be 9 months old [...]
Continue Reading →Thought I’d better put a picture up of my sweetie! Will do an update hopefully soon!
Continue Reading →SHE’S TWO!
Norrah turns 2 years old on Thursday! I cannot believe how quickly time flies. Since we have a busy weekend planned I thought that I would write her ‘birthday post’ a few days early. Norrah’s second year of life was filled with miracles and memories. She learned to feed herself and is now eating a variety of [...]
Continue Reading →Donate to wolfhirschhorn.org
Discussions
Recent Comments
- Tamara on Meet my little treasure Cassidy Renee
- Letty on Meet my little treasure Cassidy Renee
- RANJU NAIR on Meet my beautiful Niece Nayana
- Tamara on What I know…
- M on Meet my little treasure Cassidy Renee
- Janet on Meet my little treasure Cassidy Renee
- Tamara on My angel, Cezara
- aura on Meet my little treasure Cassidy Renee
- aura on Meet my little treasure Cassidy Renee
- Tamara on Meet my little treasure Cassidy Renee
Contribute Your Story
To share your story, create your LOGIN and sign in once you receive your password via email. After logging in, write your story, upload pictures and publish your story! It's that easy. If you would like to comment on our stories, you can comment without creating a login. Each comment is posted once approved. If you need help, please email us.WHS Growth Chart
In 2007, a WHS growth chart was created. Download the Wolf-Hirschhorn Syndrome Growth Chart here.Most Popular Topics
1st Birthday 2011 Easter Birthday Christmas contest results Dentist development Doctor Visits Early Intervention eating family feeding Feeding Tube food Fund Raiser Halloween Halloween 2011 Holiday Hospital introduction IQ kidneys Kidney Transplant kidney ultrasound Magnolia milestones physical therapy pictures School scooting Seizures Siblings Sitting Position Social Media Speech Therapy talking Tethered Spinal Cord Therapy Top 10 List Unborn Child update Vacation video Walking Weight GainSelect Your Story
- Addilynn (2)
- Alexander (8)
- Alexia (2)
- Ali (1)
- Amariah (3)
- Amelia (22)
- Arin Rae (16)
- Ava Lynn (8)
- Ava Ruby (1)
- Blake (3)
- Brett (2)
- Brodie (15)
- Charity (1)
- Claire (3)
- Clover (3)
- Contest (17)
- Corrine (1)
- Corwin (2)
- Dakota (1)
- DeLaney (1)
- Deliany (1)
- Denise (3)
- Devin (3)
- Dylan (13)
- Elijah (4)
- Ellye (3)
- Elsa (6)
- Emma (7)
- Esperanza (1)
- Evan (2)
- Eve (3)
- Evelina (1)
- Evvie (2)
- Featured Stories (15)
- Fiona (2)
- Frank (6)
- Fund Raiser (5)
- General Information (14)
- Grace (5)
- Harry (1)
- Hayden (2)
- Isabella (2)
- Isabella N (6)
- Jake (1)
- James Douglas (2)
- Jon York (1)
- Juliana (2)
- Justin (1)
- Karly (4)
- Karson (2)
- Kaylee (13)
- Kayleen (1)
- Kendall (78)
- Kinga (2)
- Leo (1)
- Liam (4)
- Lists (2)
- Lucy (1)
- Magnolia (5)
- Marley (2)
- Mason (3)
- Matilda (1)
- McKenzie (6)
- Mia Rose (20)
- Nathan (1)
- Nathaniel (19)
- News (2)
- Norrah (18)
- Olivia (1)
- Olivia Grace (5)
- Olivia Stella (1)
- Paisley (1)
- Parent Profile (2)
- Peyton (4)
- Reese (1)
- Region Gatherings (2)
- Renee (1)
- Rheyn (6)
- Riley (6)
- Rochelle (1)
- Ryley (2)
- Sabrina (9)
- Social Media (7)
- Talia (2)
- Talon (1)
- Tanner (13)
- Taylor (9)
- Taylor T (3)
- Teejay (2)
- Tommy (2)
- Tyler James (5)
- Unborn Child (7)
- Uncategorized (58)
- Vincent (1)