Currently viewing the tag: "update"

Mia 2021

November 2, 2021 by

Hello everyone, hope you’re all well. Mia will turn 11 in January, and she’s doing great. She still uses her wheelchair and walking frame, but can now also walk holding a hand, and recently completed a 5km walking challenge over the month of October. She wears a full torso brace to help with her scoliosis, […]

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In 2007, there was nowhere to go. A brief search on the internet brought back fear and pain. For many years, The Physicians’ Guide to Rare Diseases was the primary source of information to families searching for answers.  Every geneticist reiterated the same message: your child won’t make it. But now we have the truth. […]

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Hello Everyone it’s  been awhile since my last post and I apologize for that I was just very busy lately. But anyway I’m back again with more info and more pictures of Nayana. Well I’m so happy and proud that my niece celebrated her first birthday on May 23 rd this year! She has grown […]

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Mia – Autumn 2012

October 10, 2012 by

It has been a few months since I last posted. So here’s a quick update on how we are and where we’ve been… Mia will be 21 months old in a week or so, she weighs about 14 lb and is generally doing great. We did have to spend a night in Intensive Care last […]

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Mia’s March Milestones

March 19, 2012 by

Mia turned one on Jan 17th. We threw a party and had a really fun day with all our friends and family, but a combination of the disruption to Mia’s routine on top of an ongoing respiratory virus resulted in a cluster of seizures over the following two days and yet another hospital admission. Such […]

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Hi everyone. I haven’t been checking the site so much lately but have really enjoyed catching up with all your stories just now. It has been a busy but fun few months for us, so I’ll try and fill you in with some of what we’ve been up to… Mia will be 9 months old […]

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October 19, 2010 by

Thought I’d better put a picture up of my sweetie! Will do an update hopefully soon! 🙂

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June 28, 2010 by

Norrah turns 2 years old on Thursday!  I cannot believe how quickly time flies.  Since we have a busy weekend planned I thought that I would write her ‘birthday post’ a few days early. Norrah’s second year of life was filled with miracles and memories.  She learned to feed herself and is now eating a variety of […]

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