Hello! I am the mother of a little girl at almost 10 months. When she was 16 days old we found out that she has Wolfhirschorns syndrome. We lived 5.5 months in the hospital with her before we came home.
We live in Sweden.
// Therese
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Hi Therese,
I know of another woman, Cecilia, who also lives in Sweden with a son who has WHS. Are you on FB? It is nice to meet you and I am looking forward to hearing more about your sweet girl!
I sent you an email 🙂
Hi! I live in Sweden to with my daughter Lina, 17 years old.
We recently got the diagnosis of Wolf-Hirschhorn.
When Lina was about 1 year she was diagnost with Noonan Syndrom, but now we know that was wrong.
This website is really fantastic, I love the beautiful pictures of all children! They look so much like my Lina when she was a little girl!