Sending hugs and hellos from the Schulte family today, on Wolf-Hirschhorn Day! We are wearing our jeans, in support of rare jeans. It was a little rushed on our way out the door for school, but we got a pic!

I also wanted to share some fun news… today is also the cover reveal of a picture book I wrote, DANCING WITH DADDY, illustrated by Ziyue Chen (Two Lions/Oct. 26, 2021), which features a main character with WHS.

Elsie is the main character’s name! (She’s very much based on our Elsa, and our entire family dynamic.) It really bums me out that there aren’t many (any?) picture books that have children in main roles, who remind me of our girl, so that’s why I wrote this book.

In the story, Elsie uses a PODD book to communicate, a wheelchair for mobility, and eats fed via a G-tube. Here’s some of the art inside the story. Ziyue Chen did a beautiful job!

I’m so thrilled to share this with you all today! A librarian named Mr. Schu featured DANCING WITH DADDY on his blog today, if you’d like to check it out! Here’s the post.

This Wolf-Hirschhorn Day, I’m extra grateful for this website and the support that it’s given to our family over the years. Wishing you all a wonderful day, and giving thanks, too.

 

10 Responses to A WHS Day Hello

  1. Shay1019 says:

    Congratulations! What an exciting accomplishment! We will definitely be purchasing as soon as available. Representation matters!!

  2. Anitra says:

    Thank you so, so much! The book is actually available for pre-order now, on Amazon! And I feel the same about representation. I cannot wait for it to be in libraries for all kids to see and read!

  3. Diane says:

    Rock on Anitra, Elsa and daddy too !!!!!!!

  4. Cathy Jensen says:

    How wonderful!!! Thrilled for you and for all of us that there exists a book that takes a peek inside our lives.

  5. Keely Absher says:

    Beautiful picture of your “gene”
    Family!! I love that you created this amazing book! The illustrations are just perfect! I have to find out how I can get my hands on one ☺️. Love you guys!

  6. Sarah Gilreath says:

    Congratulations on your book! That’s awesome. We can’t wait to read it.

  7. Anitra says:

    Thank you, Diane! Means so much!

  8. Anitra says:

    Thank you, Cathy! There are so many scenes inside the book that were important for me to include. Seeing them in full color, with love, on the page is a dream come true!

  9. Anitra says:

    Thank you so much, Keely! Picture books take a really long time to come together – this one took three years!! So I’m over the moon that it’s “book birthday” is finally almost here!

  10. Anitra says:

    I hope you and your family love it, Sarah! It’s my whole heart, between two covers!!

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