Currently viewing the tag: "Life Story"

Recently, Sharon York, mother to Jon, reached out to me and asked if we were interested in a story about her son. Jon was born in 1964 and is likely the oldest living male with Wolf-Hirschhorn Syndrome. Jon turned 47 this month and Sharon detailed her story in this article. Although most of our stories are about the younger children more recently diagnosed, this site is meant to tell it all; especially ones like this.

This is a very special story and I am delighted that Sharon has opened her life to all of us.

Continue Reading