Liam’s wonderful father added this post to his Facebook account. I thought I would copy and post it here because it was so beautifully written and so heartfelt. We want to share our story with the world, but it has sometimes been very difficult to do so. We are so very blessed to have Liam as our child. He has […]
Continue Reading →Hi all, I cannot believe our Elsa is 4. Years 1, 2 and 3 were so full of medical issues and doctors visits and life coordination. Ever since she turned 3, it seems we’ve fallen into a rhythm of sorts. Don’t get me wrong, we have our tough times. And we still somehow have 2 […]
Continue Reading →Hi Everyone! We are newcomers to the world of Wolf-Hirschhorn. My son Riley just turned 5 months old yesterday! Every day is a new day with our bright little baby. To just give some background. My husband and I are first time parents and did not know until he was 7 weeks old that our […]
Continue Reading →Hello Everyone, Well, here we are at the 9 month mark. This journey has been immense, and it has only just begun. Paige has been a pure blessing. She has saved my life in so many ways. She teaches me more than I would have ever known before. Her needs are so simple and so […]
Continue Reading →My sweet little witch for Halloween!
Continue Reading →Tony is now 12 years old and Halloween is always our special holiday as a family. (His birthday is October 29th) We always make our own costumes and try to theme the whole family around each other. We love Batman so “Batman and Robin” was definitely fitting for us! 🙂
Continue Reading →The 2015 Holiday Item is ready for purchase! What is it this year? A newly designed wolfhirschhorn.org notebook. The 80-page orange notebook features this fun design and (literally!) uplifting message: The 2015 Notebook is the annual fundraiser benefiting the children of wolfhirschhorn.org. The cover reads “Going Up, Up, Up” – representing the trajectory of our kids and […]
Continue Reading →Hi Friends, We hope that everyone had a safe and happy Halloween. Wow – here we are. Paige is 6 months old and this is the first update I’ve done since her birth announcement, which was created just after we received the diagnosis. I have so much to say, but I have no idea […]
Continue Reading →We are extending the entry deadline for the Halloween Event to this Sunday, Nov. 15, 11:59 p.m. We want as many kids as possible to get the prize! This year, we will give all kids who enter the event a newly designed WHS notebook (along with crayons and stickers to make it their own). We […]
Continue Reading →See our sweet bunny pop out of the top hat to perform a magic ‘trick’ on Halloween!
Continue Reading →Quinn was Melanie Daniels from Alfred Hitchcock’s “The Birds” this Halloween. She had lots of fun dressing up and looked super cute!
Continue Reading →If you’re thinking of posting to the wolfhirschhorn.org site (for the Halloween Event or otherwise), but are feeling less-than-confident in your computer skills, here’s a quick step-by-step guide. If you have any questions while creating your post, just email me at anitraschulte@gmail.com. Looking forward to reading what you have to say! Posting to www.wolfhirschhorn.org: – […]
Continue Reading →We had a bit of a different Halloween this year. My husband is in Spain for 15 months, so that was on my mind as I was thinking about Wyatt’s costume. I know when I think of Spain, I always think of the running of the bulls. What better way to show our love […]
Continue Reading →Hey everyone, Casen is currently 18 months old and weighs 14.9 lbs. he is strictly g-tube fed and will not eat by mouth. He doesn’t seem to be getting bigger, he is still on infamil for preemies 5 ounces every 3 hours. If anyone has any suggestions on how to get him food besides the […]
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Nathaniel is clearly the unhappy one…unfortunatly this was the only good one I (the puppeteer) have of both he and Noah. Hope everyone had a Super Happy Halloween!
Continue Reading →Ethan was a bat this year for Halloween! I’m a little biased but I have to say he’s much cuter than the bats I’ve come across. We had a great time trick or treating with his older brother and were thankful everyone was healthy for it.
Continue Reading →Elsa was a swan for Halloween this year — quite fitting for her calm, graceful demeanor, I must say! Her costume was a mash up composed of a faux fur hat that my sisters and I wore long ago when playing dress up and a hand-me-down dance recital costume. In a pre-school parade filled with super […]
Continue Reading →Sergio is a strong little soldier. He faces little battles everyday and he always manages to persevere through it. This past year he has overcome a lot of obstacles. Sergio started school for the first time this fall and since the start he has been battling a multitude of germs and viruses that have come […]
Continue Reading →Here’s a pic of Esperanza, age 6, as a lady bug.
Continue Reading →Jayna was garfield. She is 8 yrs old. She loves going trick or treating. But was not happy about the head.
Continue Reading →Halloween is just a few days away, and many of you are surely getting your child’s costume prepped and ready to go. In addition to hitting your school parade and neighborhood trick-or-treat circuit, be sure to participate in our annual WHS Halloween Costume Event, right here at […]
Continue Reading →Elsa has had switches to use for communication for quite some time, but I don’t think I’ve ever posted how we use them. Here, we’re reading a book made by her teacher at preschool. It’s fashioned after Brown Bear, Brown Bear. But instead of the flow of colors and animals, it features real pictures of […]
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Well, its been a little while since I’ve posted an update about Nathaniel. He recently had a Nasal tip reconstruction and the right nare had to have bone shaved since it was completely obstructed. Other than that, he’s been doing very well. I was a little saddened last night though and it’s carried over today. […]
Continue Reading →This summer, we went to a new neighborhood park with lots of nice shiny equipment, including a sweet child-sized black gloss finished picnic table. Eager to try out Elsa’s more independent sitting skills, I put her on her bottom, on the seat facing out onto the concrete pavement below. Perhaps you can guess what happened next. I looked […]
Continue Reading →There is nothing terribly momentous about this video, but I wanted to share. This is just Elsa playing with one of her favorite toys in our kitchen… a toy that her sister stole from our speech therapist’s toy bag, a common occurrence, unfortunately. (Why are their toys so much cooler than ours?? Even the oldies […]
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This could be considered an odd or unfathomable question to some, but I’m curious if there are any WHS children who suffer from epilepsy/organ failure who have been on a trial/or even using CBD oils as a treatment? We live in Texas and CBD oil is now considered legal. I’ve read that the CBD is extracted […]
Continue Reading →As you start planning for your summer holiday, add one more thing to your to-do list: Update your information with wolfhirschhorn.org. This summer, we are updating the wolfhirschhorn.org Child Locations database, and we need your help. Here’s why it matters, and why now is the time for a refresh: When you received your child’s diagnosis, […]
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