Currently viewing the category: "Kendall"

Our Findings

May 2, 2008 by

Well, back to Kendall… Our main focus with her right now is weight gain. With her feeding tube in, we have been trying to find the maximum feeding capacity for her.

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One Week Later

April 13, 2008 by

This week has been one of ups and downs. We found very little information on WHS and how it will impact Kendall. It is very clear to us that this syndrome is unique for each person, regardless of the chromosomal deletion. We could find a person with the same exact deletion and it could have […]

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Wolf-Hirshhorn Syndrome

April 4, 2008 by

This posting comes as a very difficult one to write. The title of this posting is also known as WHS or 4p-. WHS is an extremely rare chromosomal disorder caused by partial deletion of the short arm (“p”) of Chromosome 4. In the case of this syndrome, the amount of genetic material deleted varies widely, […]

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Kendall gets G-Tube

March 23, 2008 by

This past week was another episode of hospital stays and doctor visits. Kendall had a G-Tube inserted on Thursday afternoon and was released from the hospital on Saturday morning. I stayed with her as she recovered from the surgery. The G-Tube is a tube that is used to feed her directly to her stomach. This […]

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Update

March 14, 2008 by

What a crazy few months it has been. Kendall continues to be this amazing child that brings us so much joy. She has progressed with her motor skills and is developing strength in her legs, arms and core. She recently found her hands and watches them for hours on end wondering how she makes those […]

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5 months

January 4, 2008 by

Kendall’s been with us for 5 months now and it is weird to think that she wasn’t even around just a few short months ago. She has been very active these past 2 weeks. It started with her 5 month check up and everything looked good except her weight showed her only gaining 4 oz […]

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4 Month Status

December 2, 2007 by

Kendall had her 4 month check up 2 weeks back and she’s doing great. She is still so small, but she’s growing at about 1 pound per month. She weighed in at 7lbs, 10oz, still very small for her age. It’s been a struggle for us because she eats, but sometimes she really makes it […]

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Still an amazing little girl

November 3, 2007 by

We took her to her check up at the doctor a few weeks ago and she is doing great. Although she only gained 5 ounces in a whole month, she grew 2 inches. She continues to get taller, but slow moving on the weight. She was 6lbs, 13oz at 3 full months. Still very small, […]

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Kendall is approaching 3 months and it seems like she has been with us forever. She is still a little person, but has a huge heart and loves to be taken care of. She needs to be fed about every 3-4 hours. Although she will sleep longer, we make sure that she is up taking […]

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The number 8

September 10, 2007 by

8 has always been a special number to me. 8 represents the month of my birthday, the number of one of my favorite athletes of all time(Bo Jackson), my jersey number for volleyball and not to mention Black 8 for roulette. This time, 8 represents the number of hours that Kendall decided to sleep the […]

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A gift to us…

August 31, 2007 by

The experience I’ve had with Kendall since she has been born has been unbelievable. Her early entrance into this world happened so that we could spend more time with her. About every 3 hours, she cries for food and her need for us is such a great feeling. Although we are up in the night, […]

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Only a short 3 weeks ago, Kendall was bottoming out at 3lbs as she adjusted to her new environment at the hospital. Just the other day, for her 1 month check up, she weighed in at over 5lbs. We weren’t sure how much weight she was putting on, but were thinking that maybe she was […]

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Kendall is 3 Weeks Old!!

August 9, 2007 by

It is hard to believe that our little girl is now 3 weeks old. It is even harder to believe that technically she shouldn’t even be here yet. Her due date was not until August 20, still 2 weeks out. We took her to the eye doctor earlier this week to have her eyes checked […]

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Today, Kendall went to the doctor for her 2 day check up. The doctor had nothing but positive things to say about her progress. She is weighing in at 3 lbs, 13 oz. Although that this is still very tiny, she is gaining weight fairly rapidly and is eating more and more every day. She […]

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Kendall comes home!

August 3, 2007 by

On Tuesday, July 31st, we were given the approval to take Kendall home. She was doing so well in picking up weight, keeping her body temperature and also passed the car seat test. We were very excited to hear this, but also scared at the same time. She is so small and fragile, we are […]

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She has been eating through the bottle more frequently now, which is required to leave the hospital. Cathy has been pumping milk every 3-4 hours and we bring it to the hospital for her. Here, I am feeding her a bottle and she has been taking about 1-2 ounces every feeding. She is doing great […]

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Every day, Kendall has been making progress, gaining weight and surpassing where the doctors and nurses thought she would be. Only a few days went by and she was able to have the IV removed. She still had the feeding tube through her nose and a heart rate monitor. Overall, she has been doing great.

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Visting Kendall

July 31, 2007 by

We got to visit Kendall whenever we wanted. Our visits to the hospital became a routine. Cathy would go first thing in the day and spend the morning with her. She would either come home for lunch or stay at the hospital (getting free lunch) and then come home around dinner time. I would then […]

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Cathy gets to go Home

July 31, 2007 by

Although Kendall had to stay in the NICU, Cathy was doing so well after her surgery, that she was able to go home less than 3 days after delivering Kendall by c-section. It was so hard leaving the hospital without Kendall, but we knew that it was important for her to stay until she was […]

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Some of the other family members get to finally meet Kendall. Going into the NICU required that Cathy or I were there and a scrub down was required to make sure that infection didn’t get in.

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Kendall Moves to NICU

July 31, 2007 by

After Kendall was born, she had to quickly move to the Neonatal Intensive Care Unit (NICU). Upon entering, she had to be monitored a number of different ways, including her heart rate, blood oxygen level and a few other things. Since her veins weren’t strong enough to sustain an IV, the doctor had to insert […]

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At a routine Level 2 ultrasound, the doctor found that although the fluid flows were strong, the baby wasn’t growing. At around 4:00pm, the ultrasound doctor decided that it might make sense for us to deliver the baby 4 days out. She sent us over to talk to Cathy’s doctor and her doctor told us […]

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