Currently viewing the category:
"Kendall"
Kendall has been making huge strides with walking and here we caught her on her longest journey across the family room. We agreed that we know what she’ll be for Halloween! (All in good fun of course!) We’re so proud of her…
Continue Reading →Kendall started her first day of school the other day. She loves it and best of all she’s exhausted and goes down for her afternoon nap! Cathy caught her on video ending her first day.
Continue Reading →Last month on July 15th, we gathered with 40 other wine connoisseurs at Lynfred Winery in Roselle, IL to raise funds for families that struggle to give WHS children the absolute best care possible.
Continue Reading →The other day, Kendall took steps during her Physical Therapy session. She had never taken steps unassisted before and for whatever reason, decided to go forward… and she did it! I thought for sure it would be another year or so, but she has accomplished this task 1 month prior to her 3rd birthday!
Continue Reading →This week, we reached a milestone for both Kendall and for our family. Some of you know what I mean and some of you will know one day what I mean. This week, Kendall started school. It’s amazing how far she has come when just a year ago, a first day of school was never […]
Continue Reading →There are numerous studies that analyze siblings and the effects they have on each other, their family and the people around them. I am certain that the numbers don’t lie and there is validity to most of the arguments and research made about siblings. What prompted me to write about this topic was an email […]
Continue Reading →Most of my life, I have been a selfish person that has always wondered what’s in it for me. If I couldn’t benefit, then my interest level was non-existent. I was the guy that never felt the need to drop extra change in the bucket or to give to a cause. It’s just not who I […]
Continue Reading →Kendall has a crawler and a walker, but refuses to hold an interest in doing either. She has realized that she would rather scoot her way around the house. She’s getting very good at it and her PT is trying her hardest to get her to move around in other ways.
Continue Reading →Well, we were hospital free for over 12 months, the longest stretch during Kendall’s young life. It seems that April is just not a good month for us. Last year, Kendall was in the hospital over Easter and now she was admitted again in April for early signs of Pneumonia. It’s the usual thing- fever, […]
Continue Reading →Today, while sitting in my office, I had some Dream Theater playing and as always, Kendall likes a little heavier sound. I caught her taking it in and grooving to the beat…
Continue Reading →Kendall meets the Easter Bunny!
Continue Reading →Kendall went in for a number of tests last week, mostly to figure out what’s going on with her digestive system.
Continue Reading →I am Kendall’s developmental therapist and have been seeing her weekly for about two years. Watching her personality unfold has been such a wonderful experience! she can be sweet and stubborn and funny all at the same time. Now that she scoots around the house on her bottom, she can go where ever she wants […]
Continue Reading →One day at work, just before lunch time, Kevin called me from the hospital to say a geneticist was coming to explain the diagnosis. I rushed to be there. What the doctor said that day is now a blur.
Continue Reading →
With the aid of a push toy, Kendall takes steps on her own for the first time!
Continue Reading →
Long time since last update. Kendall is doing great, has been healthy and we even got to take her on her first vacation!
Continue Reading →
Wow, what a crazy past couple of weeks. Things have been so up and down starting with Kendall’s 2nd birthday party. The crowd was small per our design, with the thought about focusing on her completely and not a monster crowd like we had with Carsen’s 2nd birthday party (80 people). Kendall’s 1st birthday was […]
Continue Reading →
I have been thinking lately about a way to help others in similar situations as ours. There are so many diseases and conditions out there that challenge parents and their ability to provide love, care and opportunity for their children. We have lived this roller coaster first hand, and continue to feel the pain and […]
Continue Reading →
With milestones come certain feelings for us to sort out. Kendall turns two in just a few weeks and her approach to this date come with successes, yet clouded with turmoil and questions yet to be answered. On the positive side, she continues to make developmental gains. Not too long ago, we were concerned about […]
Continue Reading →
One year after Kendall was diagnosed, we look back on all that happened during these 12 months…
Continue Reading →
Well, that feeling that we’ve been here before has crept up on us this past week. Kendall picked up what seemed to be an every day cold on Saturday evening. Things quickly got worse through Sunday and Monday. By Monday night, she was coughing really bad and we feared that she had pneumonia. I took […]
Continue Reading →
It’s been a while since I posted and I aways have the desire to do so, but not so much the time. Kendall has been doing so much in the past month or so. The year started out with a scare as she woke up on January 2nd with her feeding tube out of her […]
Continue Reading →
When Kendall was first diagnosed, Cathy and I had a hard time comprehending what was ahead of us. This year has been challenging for us and we have found that we appreciate all the little things much better than we used to. Over the past month, Kendall has made significant strides. We have realized that […]
Continue Reading →
It’s been a while since our last post on Kendall, and she has been making GREAT strides. It seems that over the past couple of months, she ‘woke up’, interacting more and more with us each day. She seems very much aware of her environment, and especially whether or not mommy and daddy are near. […]
Continue Reading →
It’s amazing to think that Kendall is already almost 1 1/2 years old. We sometimes joke that we have had a 6 month old for almost a year. Not so much a joke, but a neat adventure for us since she is learning at a very slow pace and we get to enjoy every moment […]
Continue Reading →
Reality is a part of life, which is sometimes very painful. Our reality has been a hard pill to swallow at times and today was one of those times. Kendall’s 1 year birthday was celebrated today. Her real date was back on 7/18, but we pushed her out so that Cathy’s friend Dawn could be […]
Continue Reading →
Kendall had a cold this week and when she is sick, she has a tough time handling food, sleep or anything else for that matter. We have to keep her off solids almost completely as her coughing and gagging becomes too much for her with any texture in her mouth. The good news is that […]
Continue Reading →
We take for granted what it is that babies do as they develop through their first few years. Although Kendall is slow to arrive at those milestones that seemed so natural for Carsen to achieve, we find ourselves celebrating every little achievement. Growing from just a few cells to be able to do what we […]
Continue Reading →
Today, Kendall turned one, even though it seems as if she has been with us for so much longer than 365 days.
Continue Reading →
The result over the past few months has been beyond our expectation. Our goal was to get her to at least 16 lbs by her 1 year birthday.
Continue Reading →