Posts by author: tanners19

Today was our meeting with Reese’s genetics doctor at Primary Childrens. We received a call a few weeks ago about her diagnosis so we had researched it as much as we could so we already knew a little about it. There isn’t much out there… Like many chromosome deletions 5q22- causes developmental delays which we […]

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Reese had her eye surgery today if you’d like to read more about it you can visit our blog: http://draperfamily4.wordpress.com/2012/05/10/eye-surgery-3/

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Update on Reese

May 7, 2012 by

We just wanted to let everyone know that we got the test results back from Reese’s genetics test and she does not have Wolf Hirschhorn… She has an even more rare deletion on her 5th chromesome 5Q22. I am a little sad its not WHS because I have found so many support groups… there are […]

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Just got done with genetics, The Dr. isn’t convinced Reese has WHS because of some other features she has, so they did a blood test and we will find out more in a couple weeks. It may be something very similar though. Possibly 18P- I will be sure to keep you posted!   Reese and […]

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  Reese is 17 months old and thriving! Reese has had her share of hospitalizations, MRI’s, Neurology and Eye appointments. Reese has been in a early intervention program since she was 5 months old however we did not know exactly what she had until about 6 months ago. She see a genetics Dr this week, […]

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