Posts by author: M

Strabismus Correction Surgery

January 7, 2013 by

Hi everyone, I’m posting this in here because it seems that the discussion area has been spam attacked.  Isabella is going to have the strabismus surgery on the 14th this month, this is her first invasive surgery so i’m a bit anxious.  Has anyones kids gone thru this, if so can you let me know you […]

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Bella Isabella at 2 years old x

December 29, 2012 by

Hi everyone, It has been a while and i’m glad to be back and active! Much has happened and i’m not sure where to start.  Many questions to ask too and was really hoping i can use the WHS network here to get some answers.  So here goes the update! Weight and Height Isabella is […]

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Bella Isabellalala

May 9, 2012 by

Hello!  Here’s an update on my lil princess… Motor skills… For the past month she’s been doing things that make me so proud of her.  She started rolling from back to belly and has started standing!!  I support her by holding her hips and it just awes me and occasionally brings me to tears to […]

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What I know…

March 8, 2012 by

We just saw our geneticist today and they told us the results of our FISH. it was just a confirmation of the previous dx.  Isabella has a 11.26mb deletion from 4p16.3-4p15.33.  It falls under the classical group (there are 3 categories mild-classical-severe) .  He printed out an article for us that is very informative, it’s […]

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Isabella N @ 14 Months ^.^

February 29, 2012 by

Hello! I myself love reading the progress and experiences that your kids are making at different stages so I told myself that I would try try try to make more of an effort in sharing ours. So here it goes!! Seizures Smeizures… Since being put on Epilum and Clobazan Isabellas seizures have been nearly non […]

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Isabella N

November 19, 2011 by

Hi Everyone, I’ve been posting comments and reading all your stories and i feel that it’s time to share ours.  My daughter was born on Dec 10, 2010 via c section with no complications besides being small.  She was 2.22kg born at 38 weeks.  She came home with us after 3 days and boy was […]

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