Posts by author: Leonie

Sabrina 2013

September 6, 2013 by

Hi everyone! It has been a while since I updated Sabrina’s progress. 2013 has been a big year for us and Sabrina has been very healthy and happy. She is still unable to crawl, walk, stand or talk but she is more interactive than ever. We like to have “conversations” and we “sing duets” together. […]

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Quick Sabrina update!

December 18, 2012 by

Hi everyone! Hope you and your kiddies are all well and enjoying getting ready for Chirstmas. I feel like I am long overdue for an update on my Sabby Sab. This year has had its ups and downs and its fair share of hospital stays, but at the moment Sabrina is healthy and happy as […]

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Sabrina can sit!

February 9, 2012 by

Well, sort of 😉 She can’t sit up by herself, but if we put her in sitting position she can steady herself and stay there for 5 minutes or more! Very exciting.

Sabrina is happy and healthy and has also been seizure free (touching wood) for the past 8 months. She has had her ears checked and it turns out she only has a mild hearing loss in one ear which is not a cause for any concern.

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Merry Chirstmas from Sabrina!

December 23, 2011 by
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Sabrina update

June 28, 2011 by

Just a quick update on my lovely Sabrina – Lately she has been doing very well with her sitting and slowly she is learning to sit unassisted for short periods of time. She is also looking like she might be interested in learning how to crawl soon, but her preferred thing to do is rolling […]

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April 22, 2011 by

Thought this was so cute. Shes my little easter bunny!

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Some special moments

January 5, 2011 by

Just wanted to share some recent pictures of my little Sabrina. She is doing so well. Unfortunately she had a third seizure a couple of weeks ago which landed her in hospital. Also this was the start of her first real cold! But the good news is she has made a full recovery at home […]

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Merry christmas everybody!

December 21, 2010 by

Hope everyone has a safe and happy holiday and a wonderful christmas 🙂 I have been keeping up with everyones developments and it fills me with so much hope to see how well everyone is doing. Sabrina has made great progress in the last couple of weeks and she is now rolling really well! Until […]

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Seizures :(

November 10, 2010 by

Just wondering about everyones experiences with seizures? Sabrina had her second a couple of days ago and spent another two nights in hospital. This one was alot like the first, started with a blank sort of stare followed by twitching in her face, then her body too. I called the ambluance straight away and got […]

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WHS growth chart

October 28, 2010 by

Sabrina’s Dr has given us a growth chart based on children with WHS from 0-4yrs old. Is anyone else using this? Just curious…

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Sabrina’s baby talk

October 18, 2010 by

Sarbina has been making some lovely sounds lately. Im learning what sounds mean what. Some are nice and some are mean! Today she has spent a lot of time having nice “conversations” with me 🙂

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New here :)

October 7, 2010 by

I want to introduce myself, my name is Leonie. My 14 month old daugher Sabrina has been diagnosed with WHS. Looking for some support, hoping to find it here!

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