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jimandkeely, Author at wolfhirschhorn.org
Posts by author: jimandkeely

Hello Friends, Wow…I cannot believe Paige is already a year and a half.  It has been a very humbling and educational time in our lives.  Paige is just under 14 lbs, and she has grown to 28.5 inches.  We have been very fortunate in regards to Paige’s health.  She has only had two low grade […]

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Paige Turns 9 Months

January 26, 2016 by

Hello Everyone, Well, here we are at the 9 month mark.  This journey has been immense, and it has only just begun.  Paige has been a pure blessing.  She has saved my life in so many ways.  She teaches me more than I would have ever known before.  Her needs are so simple and so […]

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  Hi Friends, We hope that everyone had a safe and happy Halloween.  Wow – here we are.  Paige is 6 months old and this is the first update I’ve done since her birth announcement, which was created just after we received the diagnosis.  I have so much to say, but I have no idea […]

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Paige Elizabeth

May 13, 2015 by

Greetings, We are new to the Wolf-Hirschhorn family.  Our daughter, Paige Elizabeth, was born on April 27, 2015.  She weighed 4lbs, 3 ounces.  We found out last Thursday that Paige has been diagnosed with WHS.  She is currently still in the NICU due to feeding issues.  We are pretty certain she will have to come […]

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