Posts by author: janaelamb

National 4-P Day!!!

April 16, 2014 by

Today is National 4-P day, Wolfhirschhorn Awareness.  Here’s Jordan wearing her 4-P tshirt.  I told her is was 4-P day and she gleefully replied “4-P for me!!” She cracks me up.  4-P accessories are available on the 4-p support site.  Enjoy your special day families.

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Need a doctor

April 15, 2014 by

Can anyone recommend a Dr. that they’ve dealt with, and like, that specializes in WHS? We live in Wyoming and don’t have anyone that understands our girl.  In fact, we just lost the best pedi neuro we’ve ever had.  The Dr. that replaced her is a sleep specialist and informed us that she knows nothing […]

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Meet Jordan

April 14, 2014 by

This is an addition to “Ten years in”. Just wanted to introduce you to our sweet girl. And in case you all didn’t know, April 16th is National 4P awareness day!

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