Posts by author:
A DIFFERANT KINDA LOVE…
January 6, 2012 by jaceyjay87
hi guys thought i would just update you guys on how little gracie lou is doing.. well shes nearly 6 months old shes doing very well at feeling things and is starting to hold things, she enjoys stroking my hand when i feed her. she is so lovely! she has really started to find her [...]
Continue Reading →Perfect to me..
October 24, 2011 by jaceyjay87
Let me introduce you all to my beautiful baby girl grace. She is 14 weeks and it’s flying by… Time goes so quickly and every day is so precious. We found out that she has whs at 9 weeks.. And our world felt like it had come crashing down. I must say that to me [...]
Continue Reading →Donate to wolfhirschhorn.org
Recent Comments
- Amanda on Brick Walls
- Heather (Frankie's mom) on Fiona
- nichole on Fiona
- M on Reese had eye surgery
- MeandMine_A on The good Ole’ days
- Carissa on The good Ole’ days
- Carissa on Update on Reese
- Carissa on Bella Isabellalala
- Anonymous on Reese had eye surgery
- Jennifer Freeman on Elsa: 4 Months
Contribute Your Story
To share your story, create your LOGIN and sign in once you receive your password via email. After logging in, write your story, upload pictures and publish your story! It's that easy. If you would like to comment on our stories, you can comment without creating a login. Each comment is posted once approved. If you need help, please email us.WHS Growth Chart
In 2007, a WHS growth chart was created. Download the Wolf-Hirschhorn Syndrome Growth Chart here.Most Popular Topics
1st Birthday 2011 Easter Birthday Christmas contest results Dentist development Doctor Visits Early Intervention eating family feeding Feeding Tube food Fund Raiser Halloween Halloween 2011 Holiday Hospital introduction IQ kidneys Kidney Transplant kidney ultrasound milestones Parent Profile physical therapy pictures School scooting Seizures Siblings Sitting Position Social Media Speech Therapy talking Tethered Spinal Cord Therapy Top 10 List Unborn Child update Vacation video Walking Weight GainTranslator

Select Your Story
- Addilynn (2)
- Alexander (6)
- Alexia (2)
- Amariah (2)
- Amelia (20)
- Arin Rae (15)
- Ava Lynn (5)
- Blake (3)
- Brett (2)
- Brodie (13)
- Charity (1)
- Claire (3)
- Clover (2)
- Contest (10)
- Corrine (1)
- Corwin (2)
- Dakota (1)
- Deliany (1)
- Denise (3)
- Devin (3)
- Dylan (12)
- Elijah (3)
- Ellye (3)
- Elsa (3)
- Emma (6)
- Esperanza (1)
- Evan (1)
- Eve (3)
- Evelina (1)
- Evvie (2)
- Featured Stories (14)
- Fiona (1)
- Frank (4)
- Fund Raiser (5)
- General Information (14)
- Grace (3)
- Harry (1)
- Hayden (2)
- Isabella (2)
- Isabella N (4)
- Jake (1)
- James Douglas (2)
- Jon York (1)
- Juliana (2)
- Justin (1)
- Karly (4)
- Kaylee (12)
- Kayleen (1)
- Kendall (75)
- Kinga (2)
- Liam (3)
- Lists (2)
- Magnolia (3)
- Marley (2)
- Mason (1)
- Matilda (1)
- McKenzie (6)
- Mia Rose (14)
- Nathan (1)
- Nathaniel (7)
- Norrah (17)
- Olivia (1)
- Olivia Grace (5)
- Paisley (1)
- Parent Profile (2)
- Peyton (3)
- Reese (1)
- Region Gatherings (2)
- Renee (1)
- Rheyn (5)
- Riley (6)
- Rochelle (1)
- Ryley (2)
- Sabrina (9)
- Social Media (7)
- Talia (2)
- Talon (1)
- Tanner (13)
- Taylor (9)
- Taylor T (3)
- Teejay (1)
- Tommy (2)
- Tyler James (5)
- Unborn Child (7)
- Uncategorized (27)
- Vincent (1)