Magnolia the Garden Gnome
Magnolia, the garden gnome, really enjoyed Halloween this year. It was her fourth Halloween, but the first that she actually figured out that people would smile and ohh over her if she participated. Needless to say, she got a lot of candy this year. We can’t wait for next year.
Continue Reading →Magnolia is 3!
October 5, 2010, a tiny 3lb 7oz 15.75 inch long baby was born at full term. We had received the WHS diagnosis while we were pregnant so we were prepared for her birth. As prepared as you can be for the complete unknown. Today Magnolia is 17lb 13oz and is 31 inches tall. Here is […]
Continue Reading →Sassy Little Rock Star
Magnolia has just turned 2. Some people call them the ‘terrible twos’, but we think Magnolia acts more like a pampered rock star. She screams for attention when she is ignored, she routinely throws plates of food, leaving messy destruction in her wake, and draws a crowd whenever in public. So it was an easy […]
Continue Reading →20 months?! That cannot be right, because if it is that means that in 4 months she will be 2! How did that happen? Magnolia’s personality becomes clearer everyday. She loves to be in the middle of everything. She has started to make it known to everyone around when she is mad and not […]
Continue Reading →Magnolia’s Little Bumble Bee
Happy Halloween from us and our Little Bumble Bee!
Continue Reading →Way to go www.wolfhirschhorn.org
Magnolia is in the hospital and guess what we just found in her chart that all the doctors and nurses are using as their cheat sheet? The print out about WHS from this site. THANK YOU Kevin and all of the WHS families for all you do in helping educate everyone about WHS! ~Hilary http://iwontweargrey.blogspot.com/ […]
Continue Reading →Magnolia is 4 months old
I can’t believe Magnolia is 4 months old already. During these short 4 months she has gone from weighing 3lbs 7oz to 6lbs 15oz. She has grown from 15 and 3/4 inches to 20 and 1/2 inches.
Continue Reading →Introducing Magnolia!
Magnolia was born on 10.5.10 weighs 3lbs 7ounces and she is 15 3/4 inches long. We are extremely excited with how well she is doing!!!
Continue Reading →Any advice for a baby on the way with WHS?
Hello! I’m 34 weeks pregnant with a little girl who was diagnosed with WHS at 24 weeks. We want to thank all of you who have opened your lives to us via your blogs. They were such an amazing help during the first few weeks after the diagnosis. Like you have all mentioned several times, […]
Continue Reading →Donate to wolfhirschhorn.org
subscribe
Contribute Your Story
To share your story, create your LOGIN and sign in once you receive your password via email. After logging in, write your story, upload pictures and publish your story! It's that easy. If you would like to comment on our stories, you can comment without creating a login. Each comment is posted once approved. If you need help, please email us.WHS Growth Chart
In 2007, a WHS growth chart was created. Download the Wolf-Hirschhorn Syndrome Growth Chart here.Most Popular Topics
1st Birthday 2011 Easter Birthday contest results Dentist development Doctor Visits Early Intervention eating family feeding Feeding Tube food Fund Raiser Halloween Halloween 2011 Halloween Contest Holiday Hospital introduction IQ Kidney Transplant kidney ultrasound Magnolia milestones Nayana Parent Profile physical therapy pictures School scooting Seizures Siblings Sitting Position Social Media Special Needs Speech Therapy talking Therapy Top 10 List Unborn Child update video Walking Weight GainSelect Your Story
- Addilynn (2)
- Alexander (9)
- Alexia (2)
- Ali (1)
- Amelia (23)
- Ansel (1)
- Arianna (2)
- Arin Rae (16)
- Ava Lynn (8)
- Ava Ruby (1)
- Bethany (2)
- Blake (3)
- Brett (2)
- Brodie (15)
- Caroline (9)
- Casen (1)
- Cassidy Renee (2)
- Charity (1)
- Charlotte Ellen (1)
- Claire (3)
- Clover (3)
- Contest (19)
- Corrine (1)
- Corwin (2)
- Dakota (1)
- DeLaney (1)
- Deliany (1)
- Denise (3)
- Devin (3)
- Dylan (16)
- Elijah (4)
- Ellye (3)
- Elsa (32)
- Emily Rose (5)
- Emma (7)
- Esme (3)
- Esperanza (2)
- Evan (2)
- Eve (3)
- Evelina (1)
- Evvie (2)
- Featured Stories (14)
- Fiona (4)
- Frank (6)
- Fund Raiser (13)
- Garner (1)
- General Information (23)
- Giveaway (3)
- Grace (5)
- Halloween (28)
- Harry (1)
- Hayden (2)
- Isabella (4)
- Isabella N (6)
- Jaap (1)
- Jada (2)
- Jake (1)
- James Douglas (2)
- Jon York (1)
- Joseph (1)
- Juliana (2)
- Justin (1)
- Karly (4)
- Karson (2)
- Kaylee (13)
- Kayleen (1)
- Kendall (82)
- Kinga (2)
- Leo (2)
- Liam (7)
- Liam John (1)
- Lisa (3)
- Lists (2)
- Lucy (1)
- Madison (7)
- Magnolia (7)
- Marley (2)
- Marshall (1)
- Mason (3)
- Matilda (1)
- McKenzie (6)
- Mia Rose (27)
- Natalie (1)
- Nathan (1)
- Nathaniel (28)
- Nayana (3)
- News (3)
- Norrah (18)
- Olivia (1)
- Olivia Grace (6)
- Olivia Stella (1)
- Paisley (1)
- Parent Profile (2)
- Peyton (4)
- Quinn (2)
- Reese (1)
- Region Gatherings (2)
- Renee (1)
- Rheyn (6)
- Riley (6)
- Rochelle (3)
- Ryley (2)
- Sabrina (10)
- Savannah (1)
- Sergio (2)
- Shadyn (1)
- Social Media (10)
- Sophia (6)
- Talia (2)
- Talon (1)
- Tanner (13)
- Taylor (10)
- Taylor T (3)
- Teejay (4)
- Tommy (2)
- Tyler James (5)
- Tyler Jay (1)
- Unborn Child (7)
- Uncategorized (128)
- Vincent (1)
Google Ads 1
Google Ads 2
Google Ads 3