Posts by author: chaosnks

Prayers for Mira…

August 1, 2011 by chaosnks

Well Taylor(my daughter) is in her 24th week of pregnancy. We drove to St. Louis to the Fetal Care Institute to see some amazing physicians and staff. Met a wonderful geneticist who put us in contact with people in our area who have children with WHS..all two :). We have decided after a roller coaster of […]

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Trip to Holland-raising a child with a disability

August 1, 2011 by chaosnks

Im sure many of you have already read this however I was just given it and thought I would share: Welcome to Holland by Emily Pearl Kingsley I often am asked to describe the experience of raising a child with a disability-to try to help people who have not shared that unique experience to understand […]

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Feeling Blessed

July 14, 2011 by chaosnks

I am a 37 yearold mother of an 18 year old who is 20 weeks pregnant. We discovered that the baby has a congenital diaphragmatic hernia and chromosome problems to which termination was suggested more than once. Just yesterday we received the results of the Amnio. Its WHS. We of course had never heard of it and […]

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