Wolf hirschhorn convention
Hello everyone, my husband and I are planning on attending the convention in LA in July , does anyone have any info on that if so we would appreciate it so much. Thanks
Continue Reading →Baby Casen 2015
Hey everyone, Casen is currently 18 months old and weighs 14.9 lbs. he is strictly g-tube fed and will not eat by mouth. He doesn’t seem to be getting bigger, he is still on infamil for preemies 5 ounces every 3 hours. If anyone has any suggestions on how to get him food besides the […]
Continue Reading →Baby casen 2015
Hello everyone we just wanted to give an update on baby casen , he resently had a his big 1 birthday!!! Casen has been doing very well, he has only had two small seizures since December , he’s doing very well on keppra. Casen is smiling , grabing at toys, he is such a happy […]
Continue Reading →Baby Casen
Hello everyone, my husband and I are new to the site. On April 17th 2014 we gave birth to a baby boy 3lbs 15ozs , 16 inches long. He was born with a natural serk, small recessed chin, and thin ears, my husband and I thought nothing about it but the doctor decided to run […]
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