Posts by author: BiancaR

Nayana turns two! Update

May 28, 2014 by BiancaR

Nayana turned two last week! Time really does fly! I decided it was time for an update.I also have a few questions for my fellow WHS parents.It has been a while since I posted an a lot has happened.Nayana has since had her cleft lip repaired and last April she joined the g-tube club. In […]

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A Witch!!

October 29, 2012 by BiancaR

Nayana is 5 months this October. Time sure flies by!. I admit i dont get to log on here as much as i’d  like but I would like to say that i really do appreciate all of the well wishes we have received. I try to read everyone’s posts, nd im saddened by some of […]

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Nayana- Update 1

July 28, 2012 by BiancaR

  Nayana is 2 months old now. And these past 2 months have been a whirlwind of one appointment after another.Two weeks ago she finally got her NAM device. i don’t have any pics of her with her NAM device uploaded yet but here are some pics of her when she was only a couple […]

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Intro -Nayana C. Ordonez

June 7, 2012 by BiancaR

Nayana was born May 23,2012. We found out she had WHS via an amnio after an ultrasound found she had a bilateral cleft lip and palette and that she  seemed to be growing at a slower rate then she should have been. The months following the diagnosis were filled with denial,depression,and then by the time she was […]

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