Posts by author: Anitra

As you start planning for your summer holiday, add one more thing to your to-do list: Update your information with This summer, we are updating the Child Locations database, and we need your help. Here’s why it matters, and why now is the time for a refresh: When you received your child’s diagnosis, […]

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New Friends Meet

April 17, 2015 by

We were so excited to learn recently that a family with a young daughter with WHS had moved into our area. Not the same town, but very very close by. Coincidentally (or by the Lord’s design, in my opinion), our paths crossed through our pediatrician — very respected in the area — who now has […]

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Elsa Turns 3

March 5, 2015 by

Elsa turned 3 in late December, and I’m a little late in posting due to the arrival of our third child in January. There is much to report, so I’ll get right to it!                     School: Elsa started preschool in January. We got a call from […]

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Hope you all had a wonderful holiday season. On behalf of the community, I’d like to send a HUGE thank you to everyone who participated in the 2014 Halloween Event and Holiday Fundraiser… For posting pics of your kiddos in their costumes, purchasing tote bags, and sharing the posts with your social networks, families […]

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Elsa: At-Home Prolonged EEG

January 3, 2015 by

Elsa had an at-home prolonged EEG in December. We monitored her brain activity for seizures for about 48 hours, in her home environment. We pushed the button 14 times for suspected seizure activity, but everything came back negative — no seizures at all. For now, a 2.5 ml depakene dose, 3 times a day, continues […]

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We’re excited to announce the availability of our 2014 fundraising item: the WHS Tote Bag! In our posts and conversations on, we often remark and swap stories about how our children are lights in our lives and in the lives of those around them. This is what inspires our 2014 Holiday Fundraiser design – […]

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Elsa’s Halloween Pic: 2014

November 2, 2014 by

Our Elsa was a puppy this year – and pretty happy about it! It was a really soft costume… We’ve been so fortunate to have borrowed costumes the past few years from my nephew. The fact that “puppy” fit as well as it did is a real testament to her growth! She’s getting to be […]

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Halloween Event 2014

October 29, 2014 by

  It’s Halloween week, and you know what that means… It’s time for the annual WHS Halloween Costume Extravaganza! This is our fun way of getting the WHS community engaged around a universal tradition – dressing our cuties up for the holidays and snapping their pics. Pictured above are Fiona and Ethan, last year’s top […]

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Elsa, with Bells On…

October 7, 2014 by

Elsa is now 33 months and really starting to move on her feet. Here she is taking steps with her PT with really limited help/support. We recently advocated for two times a week of PT, to make the most of her Early Intervention support from the state before she ages out at year’s end. Elsa […]

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Thanks for the great pics!

September 3, 2014 by

Hi all! Thanks to each of you who shared pictures of your beautiful children for the WHS website homepage. The photos say so much — about the innocence and spirits of your kids, about your love and care for them, and about the joy and wonder that they inspire in all of us. We can’t […]

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Call for Homepage Photos

August 2, 2014 by

WHS Families: Do you have a positively adorable photo of your child, that needs to be shared with the community? If you do, we want it for the website. Over the next few weeks, we’ll be collecting photos of our kiddos to be used in updating the homepage of We know it won’t be hard […]

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Elsa: Summer at 2 1/2

July 18, 2014 by

  Hello all! Just wanted to share a quick update of Elsa at age 2.5. – Right now, she is just shy of 23 pounds and 34 inches long. Her hair is really growing now. Most of her teeth came in at about 27 months. – Feeding hasn’t been going great since her last seizure, in April […]

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Elsa: 21 Months

October 7, 2013 by

We wanted to share some updates on Elsa — as she passes the 21 month mark: Prevacid: After being told by many a doctor that Elsa is “just a pukey kid,” last week she went on Prevacid for reflux. It has already made a remarkable difference. Normally, a cold leads to 3 or more pukes […]

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Elsa: Big Sister

July 29, 2013 by

Elsa is officially a big sister! On June 22, 2013, we welcomed little sis Cecilia to the family. Elsa was a little skeptical at first… And gave her a few sideways glances… But she’s coming around… The little ladies are almost exactly 18 months apart. Right around the time that Cecilia joined the family, Elsa made three […]

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Elsa: 16 months

April 27, 2013 by

Elsa is 16 months and really hitting her stride! Around the time of her one-year birthday, it seemed her development had pressed the pause button. We think she must have overheard us discussing this, because shortly thereafter, there were some pretty major developments: –  Reaching and grasping: This was a no-go at her one-year eval. […]

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Elsa: 1 year

January 5, 2013 by

Elsa just turned 1, and we’re looking forward to lots of progress in 2013. We’d love to share her current status across a few areas — ones that we’re always keen to read in other people’s posts, as we look to the future and wonder what might be in store for our angel. Hope this […]

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Elsa: 7 months

August 3, 2012 by

  The 7 month mark brought a bunch of exciting events for our Elsa. In honor of the milestone, we’ll share the top 7 highlights: 10 pounds: Elsa made it to double digits around July 4. She was cookin’ for quite a while, after we switched from Level 2 to Level 3 nipples. That seemed to […]

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Elsa: 4 Months

April 29, 2012 by

Our little Elsa is now 4 months old! Hard to believe, as time has flown so very quickly. We love our little angel so much. She is doing very well, and the WHS community continues to be such an amazing support to us. Thank you all for your messages! Here are some updates, across a […]

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Introducing Elsa

February 21, 2012 by

I want to start with a big thank you to the community. You all are amazing, and my husband and I are so excited to meet you all. Our little Elsa was born Dec. 28, 2011, full term. We went into labor on my due date (Dec. 27). Labor was smooth, with no complications. […]

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