This could be considered an odd or unfathomable question to some, but I’m curious if there are any WHS children who suffer from epilepsy/organ failure who have been on a trial/or even using CBD oils as a treatment? We live in Texas and CBD oil is now considered legal. I’ve read that the CBD is extracted from hemp plants and marijuana plants and if an entire trial size bottle was ingested by some idiot all at once and drug tested later, there would be no evidence of THC in their system. It does not give the person using it a “high” so to speak. I’ve read several testimonials of children who began to speak 2 days after starting the oil, and I read about a boy who had over 500 seizures a day, was on several meds, and had never swam and is now on ONE med along with one dose of the oil twice a day….and has been able to swim on his own. Nathaniel used to say some words but after his repeated seizures, lost it. He said ,”Mama” once when he was sick and that was it. I would love to hear him speak and run and jump and say say,”I love you!” I would love for him to be able to play with his WAY BIGGER little brother. I’m just curious if this is something I should consider…..are there any other WHS children who have tried this and if so, what were the results of the trial? I choose the picture for this article because these 2 little guys will be with each other for a while. I would love to overhear their conversations and watch them play together.

Nathaniel on the left Noah on the right.

Nathaniel on the left
Noah on the right.

 

 

 

 

5 Responses to Question requarding CBD…

  1. Sean (Esme's father) says:

    Hi from the UK,

    There was a fascinating TED talk on this and how it helped those suffering seizures. See here https://youtu.be/MK7vvcv_t9Y

  2. letty says:

    Thank you soooo much for that link. It was very informative. Now I have more info and questions for mu sons doctors.

  3. Stephanie says:

    I don’t know how I’ve gone two years and just now figured out we live very close to each other! I thought I’d read every post on here when we received my son’s (Bryan) diagnosis. We are in corpus every other week for feeding therapy. Would be nice to meet you and Nathaniel some time.

  4. letty says:

    What days and where do you’ll go for feeding therapy?

  5. letty says:

    I’M SO EXCITED! I would love to meet you and Bryan!

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