It has been a really long time since I have had a chance to sit down and post an update. Time has gotten away from me. School coming to and end and summer beginning has had me in a whirlwind of work, appointments, vacation and just plain fun. I have been wanted to post an update for quite some time because so much has happened.
Last month we attended a Regional 4p- gathering and got to reunite with families that we met four years ago when Dylan was just three months old and met a lot of new ones. It is always so great to be able to talk with other parents who completely understand and just “get it.” I felt very fortunate that we lived only about 20 miles away from where the gathering took place and were able to attend.
Dylan has made recent progress in his means of mobility over the last few months. He now is a pro booty scooter and gets around the house pretty darn fast. He is quick to scoot into the office and dump out the trash can so that he can make a complete mess of all the papers I have thrown away. He is quite proud of himself I might add. I often find him scooting around the house getting into mischief – but I do love it! It definitely is the little things. 🙂 He is also now able to walk in his gait trainer without the crotch strap/seat. He only needs the chest support! He can also propel the walker himself – someone usually would have to push him from behind but now he has figured out that he can move it himself. This accomplishment has been a year in the making and I couldn’t be happier. I know that independent walking will come eventually, just at his own time.
Dylan can hold his own sippy cup and drink on his own. He does tend to dribble and makes little wet spots on the floor but I don’t mind because he is holding his own cup!!! This has been HUGE for us – I can now just set a sippy cup of water on the floor and he will scoot over when he is thirsty and take a drink.
Dylan is completely amazing and continues to be the light of our lives and brings a smile to everyone’s face.
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That is amazing. I can’t wait to be able to post something like yours. Way to go Dylan!!!
Hi Kristy! My son was just diagnosed with WHS three weeks ago. When we received the news, we left the pediatrician’s office feeling devastated and hopeless. I honestly felt like life was over. I came home and immediately got online to begin learning. I came across your blog Our Little Pickle. Reading Dylan’s story, seeing his beautiful smile and seeing the pics of your beautiful family gave me such comfort and peace. After reading it,I truly felt that we would be ok and we would find a way to live a happy life with Ethan. I just wanted you to know the impact your story had on me and I’m sure it’s doing the same for others. Thank you for sharing.