Well, so much has happened since my last post. Nathaniel spent this past Halloween in the hospital. That’s when he was sick and lost weight, so he had an emergency g-tube placed. Then 11/27/13, there we were, back in PICU-seizure. Then 12/27/13….he was originally admitted because of Pneumonia and respiratory distress. A few hours later he had a seizure because of his 103.5 temp. Needless to say, he was intubated and fought the sedation. He had to be restrained even though he was given 2 narcotics. They added a 3rd non-narcotic and that still didn’t work. Eventually he was put on propophal and weened off the others. He was intubated for about 4 days and was eventually moved to a regular floor. He required oxygen and stayed on the regular floor for another 5 days. Every time they tried to take him off oxygen, his O2 level would drop to the low 80’s. So, we spent New Years in the hospital. Luckily, he was released 2 days prior(1/6/13) to his Birthday(1/8/13).

“The ONLY disability in life….is a bad attitude”—-Matthew Jeffers
Loved it! So true.
I hope all is well out there in wonderful and adventurous world of WHS!!!
2 Responses to Nathaniel’s overdue update…
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Sweet Nathaniel’s family,
Thoughts to you as we read this update. This time of year is just a demand on our kiddo’s. May you stay well and gain strength. Your story is all to familiar….our daughter Sophia is 7yrs. and each season she is getting stronger and the hospital stays have been less! Love the quote by Matthew Jeffers, “the ONLY disability in life, is a bad attitude.” You all are champions in life, stay healthy and hopeful. We are cheering you on!
Happy Belated Birthday Nathaniel. You are such a brave little man. Your story is so amazing because your mom has such a good attitude. How is the rest of the family coping? We pray that, the supernatural strength you need will continue to be poured out on all of you.