Our family received word about a month ago that Amelia is officially approved for the kidney transplant. All of her specialists, and some we have only just met, have agreed that there is no medical reason for her not to have the transplant. I will donate my kidney when Amelia’s kidney function falls to about ten percent. She is at about 14% right now. Amelia was at 15% last December when we first heard the news that she would need a kidney transplant.

Although it is difficult for me to share this private information, I know it is important to follow up with how our wall is slowly being taken apart brick by brick and how the readers of this blog have had such an important role in making this happen. We have been contacted by so many generous, compassionate, and caring people wanting to share their stories, offer their prayers, and show their love for Amelia. Many strangers have supported our family through blogs, tweets, Facebook and the petition (Thank you Sunday Stillwell)!

For quite some time, it was very difficult for me to get past the negative comments people would make about my daughter and the special needs community. As anyone with children can understand, there is a primal instinct that overpowers a parent to protect their children when they are threatened physically, socially and emotionally. Walking away from the negativity and focusing on the positives that have happened since last January is a big accomplishment for me. Another life lesson Mia and the boys have taught me as a parent!

Oh, and most importantly, I have absolutely no regrets about writing “Brick Walls” and the chaos that ensued afterwards. It has opened many people’s eyes to just one more injustice that the special needs community endures because someone in authority does not believe a life that Is different from their own is worth living. I stand by what I wrote and heard loud and clear what was being presented to me that day. Brick by brick, I hope we can all work together to take down the walls society places around our children.

 

Photos courtesy of Cindy P. Amelia’s teacher and best friend!

 

 

Donate to the wolfhirschhorn.org community.

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24 Responses to Kidney Chronicles Part Three

  1. JO WITNEY says:

    So very happy to hear the great news. You young lady are a hero, you don’t know it yet, but what you have done for the handicapped will be remembered long after we are all gone. You had the guts to stand up and say no I won’t be shoved under the carpet, hidden in a closet, or ignored. You were/are so right no child is more deserving than another. This message will resonate throughout the world, and hopefully it will touch every compassionate heart it finds. We need more people like you honey. Bravo, and I’m following you till that precious baby girl is better, and beyond. jo

  2. Megan Comorote says:

    What awesome news for such a wonderful and deserving family!! I will continue to keep you, Joe, Mia and the boys in my prayers!! God bless!!

  3. Chrissie Parker says:

    What great news for Mia and your family!! So happy to hear this! Thoughts and prayers are continued!

  4. Noreen Ringlein says:

    Really happy that all your efforts have lead to this. You are an inspiration for all families with children with disabilities. Keeping Mia and your family in my prayers.

  5. Karleigh Jones says:

    I am stoked to hear it and wish you all the best. <3

  6. helen says:

    I am sooo very happy about the news!!!god bless you and ALL your family and hope everything will go as it should
    good luck and lots of love!!!!

  7. AnnMarie says:

    God Bless beautiful Amelia

  8. JenB says:

    Reading Amelia’s story is very moving, I just read it all today. I am so happy the hospital examined its policies and I hope that initial doctor was not on Amelia’s team moving forward. This last post is from August. Are there any updates since the transplant happened? Did it actually happen?

  9. shirley bidnick says:

    I’m glad you are letting the negative stuff go. It is hard to do that. The hurtful words and actions of the minority can blind us to the helpful supportive words and actions of the majority, if we allow them to.

    Our children have human rights. In the past they didn’t, but since 2007 (2010 in Canada), they do. I am going to spend the rest of my life fighting for and demanding these rights for all persons with disabilities. It is the only way to silence those who want to deny the rights and freedoms of our children.

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