wolfhirschhorn.org

Hello Everyone,

This is Marley, she is 10 months old and 10lbs 4oz she is the most delightful, easy going little girl, we are from Nova Scotia, Canada.

Marley made her appearance into the world on April 18, 2011, weighing 5 lbs 1oz. She arrived with a planned induction due to knowing she was on the smaller side, we had a short stay in the hospital, a few questions were asked by doctors “does she look like your other daughter” but I was not overly concerned, she had a different nose than my daughter but the same big blue eyes so we headed home with no second thought of it. Over the next 3-4 months we battled with weight gain, we were in and out of doctor offices trying to figure out why she was not gaining, finally she was put on a high calorie formula and that seemed to help, we all just thought she was meant to be smaller than the average baby. Then I noticed she wasn’t meeting milestones, and before I knew it, her first seizure happened and landed us in hospital for 5 days. Every test under the sun was done and nothing showed up that gave us any specific reason why the seizure had happened. Next was the genetic testing and in early December we got the news that Marley had WHS. It was the piece of the puzzle that was missing, the slow weight gain, the seizure, her unique little look, her hoarse little cry, her bum dimple,  her high tolerance for pain, it all made sense now.

Now we are here, I came across this site when I first started trying to gather information about WHS and I have been checking back weekly ever since, your stories have helped me with questions and given me strength knowing I’m not the only one out there. My family and I look forward to being a part of this wonderful site.
We will keep you posted on Miss Marley

Ebony