Well Taylor(my daughter) is in her 24th week of pregnancy. We drove to St. Louis to the Fetal Care Institute to see some amazing physicians and staff. Met a wonderful geneticist who put us in contact with people in our area who have children with WHS..all two :). We have decided after a roller coaster of emotions to just stop and enjoy the preganancy…we cant change the outcome,we wont know the severity til our baby girl is here and so we are just going to keep on living(although I find myself randomly crying daily( I feel ridiculous)…anyways if anyone is a member of facebook we have a page going and would love for you to join http://www.facebook.com/groups/236547019701943/?ap=1
Thank you for all your continued stories as they do help tremendously!!!Bless you all and your amazing families.
7 Responses to Prayers for Mira…
Leave a Reply
Donate to wolfhirschhorn.org
subscribe
Contribute Your Story
To share your story, create your LOGIN and sign in once you receive your password via email. After logging in, write your story, upload pictures and publish your story! It's that easy. If you would like to comment on our stories, you can comment without creating a login. Each comment is posted once approved. If you need help, please email us.WHS Growth Chart
In 2007, a WHS growth chart was created. Download the Wolf-Hirschhorn Syndrome Growth Chart here.Most Popular Topics
1st Birthday 2011 Easter Birthday contest results Dentist development Doctor Visits Early Intervention eating family feeding Feeding Tube food Fund Raiser Halloween Halloween 2011 Halloween Contest Holiday Hospital introduction IQ Kidney Transplant kidney ultrasound Magnolia milestones Nayana Parent Profile physical therapy pictures School scooting Seizures Siblings Sitting Position Social Media Special Needs Speech Therapy talking Therapy Top 10 List Unborn Child update video Walking Weight GainSelect Your Story
- Addilynn (2)
- Alexander (9)
- Alexia (2)
- Ali (1)
- Amelia (23)
- Ansel (1)
- Arianna (2)
- Arin Rae (16)
- Ava Lynn (8)
- Ava Ruby (1)
- Bethany (2)
- Blake (3)
- Brett (2)
- Brodie (15)
- Caroline (9)
- Casen (1)
- Cassidy Renee (2)
- Charity (1)
- Charlotte Ellen (1)
- Claire (3)
- Clover (3)
- Contest (19)
- Corrine (1)
- Corwin (2)
- Dakota (1)
- DeLaney (1)
- Deliany (1)
- Denise (3)
- Devin (3)
- Dylan (16)
- Elijah (4)
- Ellye (3)
- Elsa (32)
- Emily Rose (5)
- Emma (7)
- Esme (3)
- Esperanza (2)
- Evan (2)
- Eve (3)
- Evelina (1)
- Evvie (2)
- Featured Stories (14)
- Fiona (4)
- Frank (6)
- Fund Raiser (13)
- Garner (1)
- General Information (23)
- Giveaway (3)
- Grace (5)
- Halloween (28)
- Harry (1)
- Hayden (2)
- Isabella (4)
- Isabella N (6)
- Jaap (1)
- Jada (2)
- Jake (1)
- James Douglas (2)
- Jon York (1)
- Joseph (1)
- Juliana (2)
- Justin (1)
- Karly (4)
- Karson (2)
- Kaylee (13)
- Kayleen (1)
- Kendall (82)
- Kinga (2)
- Leo (2)
- Liam (7)
- Liam John (1)
- Lisa (3)
- Lists (2)
- Lucy (1)
- Madison (7)
- Magnolia (7)
- Marley (2)
- Marshall (1)
- Mason (3)
- Matilda (1)
- McKenzie (6)
- Mia Rose (27)
- Natalie (1)
- Nathan (1)
- Nathaniel (28)
- Nayana (3)
- News (3)
- Norrah (18)
- Olivia (1)
- Olivia Grace (6)
- Olivia Stella (1)
- Paisley (1)
- Parent Profile (2)
- Peyton (4)
- Quinn (2)
- Reese (1)
- Region Gatherings (2)
- Renee (1)
- Rheyn (6)
- Riley (6)
- Rochelle (3)
- Ryley (2)
- Sabrina (10)
- Savannah (1)
- Sergio (2)
- Shadyn (1)
- Social Media (10)
- Sophia (6)
- Talia (2)
- Talon (1)
- Tanner (13)
- Taylor (10)
- Taylor T (3)
- Teejay (4)
- Tommy (2)
- Tyler James (5)
- Tyler Jay (1)
- Unborn Child (7)
- Uncategorized (128)
- Vincent (1)
Google Ads 1
Google Ads 2
Google Ads 3
I clicked on the link and it brought me to an Amanda Peyton– is that the right page? Lots of love and even greater luck as you both continue in this journey. We are here for you and your daughter!
Sorry…link is incorrect…fixed it!!:)
Where are you located? I live near Springfield, MO. It’s only a 3 hour drive southwest of St. Louis …
@ Carissa we are in the Kansas City area…I think its still about a three hour drive from Springfield
We’re no strangers to the KC area. We visit there often. Maybe your daughter & I can meet up sometime after our babies are born.
that would be fantastic!!!
Hello! I’m so happy you found this site!! Our daughter, Magnolia, just turned 10 months old. It seems like just yesterday we were given her diagnosis. At that time we didn’t know of any other kids close to us. We live in Wichita and have just recently met another adorable little girl who lives here and we know of a couple of kids by Lawrence. Please feel free to email me. I would love to get together.
hilaryannl@yahoo.com
iwontweargrey.blogspot.com
~Hilary