Elijah is just over 5 months now and weighs over 11lb. Elijah’s has a NJ tube for feeds – he’s had it since before he came home from the NICU, do to silent aspiration. He is now ready for a more permanent feeding tube and it’s been suggested that we include a Nissen fudoplication and LADD’s Procedure well he is in surgery and already under anesthesia. I have done research, talked with my Doctor, and am now left with a decision to make – to go ahead with an invasive open full procedure ( G-tube, Nissen fudoplication, and LADD’s Procedure) or to just have the G-tube placed – with possibility of having a secondary procedure for the Nissen fudoplication, and LADD’s Procedure latter on. I have been told that it is fairly common to have these procedure done together and this is most likely the route we will take, but I’m wondering if any of the WHS families that have feeding tubes have had the Nissen fudoplication, and LADD’s Procedure done with or with out the G-tube. What suggestions would someone that has experience with the procedure have for someone considering this operation?
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Hi, I am new to the the website in the sense that I have not shared my son Brett’s story. Our little sweet Brett passed away on April 20, 2011. He was 5 1/2 years old. I plan to share our story, but things are a little crazy right now. I saw your question and wanted to tell you that when Brett was 9 months he rec’d his G-tube and our doctor at Riley in Indianapolis really suggested the Nissen. It worked WELL for Brett. No longer did we have him spitting up 60 % of what he ate, and he finally began to gain weight. Brett still had his “coughing and gagging” spells while being fed via g-tube, but the nissen held well and milk never came out of his mouth and nose again. Our Doctor did talk that in the future it may come “undone” and we would need to do it again. Hope this helps.
Our doctor also suggested the Nissen and it has been the best decision I have ever made for Mia. She has had it now for almost two years and we have never had a problem with it. It stopped all food from coming out her nose and all of her reflux. She stopped reflux meds about a month after surgery. Amelia turned three in March and weighs 24 pounds. It is wonderful! Hope all goes well with the surgery!
Val Thank you for sharing the information and experience you have had regarding the G-tube with Nissen fudoplication and how well it worked for Brett. I’m so sorry to hear about your loss and when you are ready to shared Brett’s story, I would like to be one of the first to hear about who he was. If you ever feel like talking my Email is chihu7@gmail.com
Hi! Emma got a g-tube at 7 months after having an NG tube for 3 months. She did NOT have a nissen fundoplication or LADD’s and it was not suggested to us. She’s 4 and half years old and doing well, but she did have lots of problems with reflux that got better with age and as she spent more time upright. A year ago she started walking and I also switched her to a blended diet through her g-tube (instead of formula) and I’m not sure which or if it was a combo of both, but she’s off her reflux meds now and only has problems when she’s extra phlegmy from a cold. Not sure if this helps any, but I hope all goes well for Elijah! He’s a cutie!!
Здравейте моят син Веско е със гастростома от 2002година.Имаше рефлукс и му беше направена фундопликация по Нисен и поставена Г-тръба.Той е на 13 години и в момента тежи 10 500 кг.Храни се с Фризобин.Не повръща.Понякога се дави след като го нахраня.