Taylor had her first dental appointment on Wed. of this week. The Dr. said that all of the pediasure Taylor drinks from the bottle is not good. We have a problem because the only way I can get Taylor to drink the pediasure is from a bottle. He wants to go in and do some crowns and caps. We have a pre-op appointment set for the 28th and then the surgery is set on the 29th. Before the surgery they are going to do a physical to re-check her heart and make sure everything is still looking good. I pray that all the right decisions are being made by me and the doctors. We already struggle with getting Taylor to eat food and I am scared this will set her back. He seems to think that her teeth in the back may be causing some pain and might be the reason she struggles with eating. She is my sweet little angel and I want what’s best for her!
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I am confused~ why is the Pediasure bad? Is it rotting her teeth? Or is it something with the way that her teeth are coming in that he wants to fix some of them. Kaylee just started on the pediasure, so I’d love to know what, specifically, he was concerned about with regards to her drinking it from a bottle. Good luck with the surgery…I hope that it helps minimize her struggle with eating. Please keep us posted!
Taylor for some reason will not drink the Pediasure from a cup only a bottle. Right now we have to make sure she drinks 3 to 4 of them within a 24 hour period. The Dr. says that Pediasure has a lot of sugar and since Taylor will only drink it from a bottle, the sugar sits on her teeth longer. He said we needed to try and get her to drink it faster. He wants us to meet with a nutritionist from their hospital to come up with a meal plan with certain foods that he feels Taylor can eat and drink and still get the amount of calories she needs. He said her teeth are rotting not only from all the pediasure but because her body can’t produce the right amount of minerals and vitamins that we need to keep our teeth healthy and strong. He said brushing alone is not going to help Taylor. It takes two people to hold Taylor down to get her teeth brushed. He said that most kids he knows of drinks about two a day and no more. We already struggle with Taylor eating and drinking until this is why I am so worried about all of this. I have one Dr. telling me don’t worry about the teeth because considering her syndrome her teeth look very good and that the important thing is gettting into Taylor what she needs a day from the pediasure. Now we have another Dr. saying she needs to come off of it and start taking in more by the foods she eats. I really don’t think he understands what a struggle it is with eating and drinking where Taylor is concerned. Chewing is a big problem. I just want what’s best for Taylor! How much does Kaylee need to drink a day of the pediasure?
Kaylee is only 1 year old and weighs less than 12 lbs. Our GI told me that 2 bottles (16 oz) would be ideal for her. On a very good day, we get that– but usually it is more like 12-14 oz. She doesn’t have any teeth yet, and I am so afraid of when that day comes because I do not expect them to look very good (based on an MRI image we have that shows them all over the roof of her mouth). Is Taylor on a g-tube? We are putting Kaylee on one at the end of the month. We are mostly concerned about the level of her nutrition and how it is affecting her development, but now I am thinking that maybe it will help us with potentially avoiding an issue like the one you are dealing with, too. It is so hard when you get two different opinions from medical professionals….what is the right thing to do? Who do you trust? I feel for you in this situation. How much does Taylor weigh now, and how old is she? Follow your gut instinct on this one…my faith in doctors as a whole has been tremendously shattered, so I mostly talk to other moms who know from their personal experiences how something has affected their child and use my gut as to whether or not it would impact Kaylee the same way. Questionable approach? Perhaps, but can I sleep at night? Yes. Lots of luck!
Taylor is not on a g-tube. It has never been discussed with us. She is 3 years old and weighs 24 lbs. How did you come to the decision of putting a g-tube in for Kaylee? What caused the Dr. to order an MRI of Kaylee’s teeth? Taylor’s teeth came in very slowly and they are still not all the way in. They look pretty good when you are looking at her smile but when she opens her mouth and you get a good look at the back, that’s where we see problems. We have never had an MRI of anything except her spine and that was done shortly after her diagnosis. One of the things that scare me is not knowing what to ask a dr. to check. The only way we found out that Taylor has hearing loss is me asking them to check it because of something I read online about WHS. If it wasn’t for that I wonder how long we would have went without knowing.
The MRI was done because of Kaylee’s seizures…if I remember correctly. The Neurologist wanted to get a full picture of what the structure of Kaylee’s brain looked like. It was incidental that we ended up seeing the teeth. We also found out that way that she has fluid in her middle ear, which is why she has a BAHA hearing device now– to bypass the fluid.As for the g-tube, there were a number of factors. My biggest concern was that Kaylee stopped progressing in her milestones. She is over a year, and her head control is still weaker than it should be, and she cannot push up on her arms. I expected delays, but I suppose I expected that at least by this time that she would be doing that 3-month skill. Her PT mentioned to me that nutrition plays a role in children hitting miletones– she may be eating enough to barely grow but leaving nothing left to have energy to exert strength needed to perform the tasks required to do the things I want her to do– sit up, push up, eventually crawl, walk, etc. It has been a hard decision– I am so scared of my ability to take care of the tube and, of course, fearful of it falling out, getting infected, etc. However, the benefits at this point seem to outweigh the risks as long as I remind myself that it isn’t forever and that she will still be primarily orally fed. I just will have some peace of mind that she is getting what she needs to develop fully– especially cognitively– especially on the days when she doesn’t even eat 14 oz of Pediasure (like today), Plus, I am hoping that she will start hitting those milestones faster once she begins gaining weight more actively.
Pediasure isn’t good for teeth nor are some forms of water. What I thought was bottle rot ended up being a case of dental fluorosis. Wean your daughter off the pediasure though. Get her off the bottle and give your daughter safe drinking water. Not all filters work to clean out nasty chemicals. Too much fluoride is bad for children and it’s in the water, some products then combine that with sugar and tooth disaster.
Look up bottle rot teeth then look up dental fluorosis. Most dentists will not tell you about dental fluorosis as they’ve learned in school fluoride is good for teeth although newer studies are reporting otherwise.
Does anyone know if there have been any lawsuits against Pediasure because of the damage done to teeth?