Up to this point, we’ve been fairly fortunate with Kendall and seizures. In fact, her seizure activity had been limited to a slight loss of balance and a few seconds of regaining her whereabouts. In light of this, we’ve been giving her valproic acid twice per day. She’s been on this for some time and we seem to have been seizure free for at least 12 months. At least until last weekend…
Kendall didn’t seem to be herself most of the morning last Saturday. On our way to the book store, she was slumped in her car seat, continuing to say that she wanted to go night-night. This was very much out of character since it was early in the day and if she was tired, she would just dose off. Well, her energy level remained low and as we were walking around, she started to lose her balance and locked her vision on to a light in the distance. Most of her body went limp and she started to tremble. I held her and tried to get her attention, but to no avail. The trembling continued for maybe 15 seconds, and when she stopped trembling, she still was unable to acknowledge my repeated attempts to get her attention.
After another 5 minutes or so, she started snapping out of it and came back to the current situation. She could ascertain that I was with her as she disengaged from the light and wandered around at her surroundings. Some of her strength returned, but overall, she remained weak. In addition to her loss of energy, she stopped talking. In normal situations, you can’t keep her quiet. For the next 2 hours, she didn’t say a word. Only when we got home and she saw Cathy, she said “mama”.
The seizure zapped her energy for what appeared to be about 2 days and she slept quite a bit over the weekend.
There’s no question that we’ve been lucky to date, knowing what other children have gone through in regards to seizures. This is a very mild one indeed and I am grateful that it was only for a short period of time. The whole energy thing was baffling to me since we’ve never experienced this before. Hopefully, this will be the worst of it…
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I am so sorry this happened. Seizures are just so scary for me. My daughter has stopped breathing everytime she has had one. You seem to get your hopes when they go so long without having one. Thank God she is doing ok now! Your daughter is so beautiful and just from the photo I can tell she has your heart.
Ugh. I so much hate them. I hope this is her last one. Was she running a fever afterward?
Give her a big hug. Sweet little girlie.
I am so sorry to hear about this. How scary for you! I am glad to know that Kendall is back to her normal, happy self. I love the picture, she is just too cute for words.
Ah yes, I forgot that part. She did have a fever afterward and it climbed to a little over 102. It lasted for about a day. Is that common?
I love the photo you posted of the two of you; she has a very special smile that just lights up her entire face! I am so sorry to hear about the seizure; I know how scary they can be. Kaylee has just been placed on a second medication to try to control them. I hope this was the last one for Kendall. I was wondering if the fever brought on the seizure? I know that spiking a high fever can induce a seizure, but I had never heard about a seizure bringing on a fever. My instinct would be to say that she may have been brewing the cold and fever and that is what zapped her energy and incited the seizure…but maybe it is the other way around. Hugs to your little girl!
The fever came on after the seizure. I’m not sure why that would have happened.
So sad to hear sweet Kendall had a seizure! Hope it was the last! She is really SUCH a cute smiley girl! Love the pic!
My daughter will not have a fever at all then go to 102-105 with in minutes, then comes the seizure. Had I not known to check her temperature from previous seizures I wouldn’t have even known she had one in the beginning. Then most of the time we would find out out she had some type of viral infection. When she used to get RSV she would have 2 – 2 1/2 hr seizures. They are always very hard to see. These children are such a blessing they all have heaven in their eyes. They are very special children and your daughter has the same eyes and smile, like Heaven. God Bless your family!!
I haven’t read anything in quite sometime on this blog… I have been falling way behind on mykeepingup with our WHS family…
I am soooo sorry to hear that Kendall had such an episode. Our little Emerson Paige gets fevers after seizures well, big one… often times the fever does bring on the seizure so we keep an eye on her temp and that is how I know she has been fever free before a seizure and gotten one after it! It is not that uncommon from what we’ve been told. Luckily so far Emmy has been “major” seizure free for over a year now… she still has momentary ones.
I miss keeping up with Kendall’s progress she is such an adorable angel… the last I saw/kept up was when she walked into school un aided… she is an inspiration to us!
Hugs to Kendall and all of you!