The doctors told us she was a very healthy baby and they seen no problems. At one of our check up appointments the doctor found a heart murmur. We were sent to see a cardiologist that told us Taylor had a small hole in her heart called ASD with mild pulmonary . She was monitored for a year with meds and everything ended up healing on its on. Taylor is monitored by several different doctors for various reasons. Taylor started having seizures when she was about 10 months old. The seizures was so scary. Taylor would start to stare off and then her lips would turn purple. She would stop breathing and her whole body would turn purple and tighten up. She has had several seizures and each one has lasted about 15 to 20 minutes before coming out of it. She is now taking Keppra and has been seizure free for 1 year and 8 months. We were told that Taylor’s chances of walking, talking, and surviving was not very high. Taylor is developmental delayed but she is walking. She took her first steps at the age of 2 and is getting stronger and stronger everyday. We have been going to PT, OT, and speech therapy since she was diagnosed. Taylor is not talking but she will say about 4 words. Momma, da da, kitty, and attempt to say bubble (hubble). She has a moderate hearing loss in each ear and has hearing aids for both ears. She wears them very well and rarely messes with them. Taylor has just started pre-school and has been doing very well. I am so proud of her and I thank God for Taylor everyday. I would not change a thing about her now. Everyone Taylor has come in contact with has just fell in love with her.
I was so happy to have come across this site because when we first learned of Taylor’s Syndrome we saw pics and heard stories that were not very up lifting. Every child and stroy that I have read about on here is so promising. Each one of these children is just so adorable! I decided to join this blog to maybe help uplift someone else and to share stories because one of the hardest things is with this syndrome there is not a whole lot of info out there and everything we have found out about this, we have had to find out on our on.

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7 Responses to Introducing Taylor

  1. Hilary says:

    Welcome! What a cutie!! I was also so relieved when I found this site. Thanks for sharing your story. Looking forward to getting to know you and Taylor!

  2. Samm says:

    Hello there,welcome to our little family…my monkey is called Talia she will be 3aweek today,it’s been a tough year on us all,but we never let it get us down…she’s had heart surgery,and so many massive fits in the last few months,but on the bright side she recovers well and is attempting to walk on her own,she sings all day and is so smiley and happy….Taylor looks so adorable ,I look forward to hearing more about her..much love..xx
    samm

  3. Elijahsmommy says:

    Being it that Elijah is only a month old we are new to the WHS family… You go through so much in the beginning with very little hope, its nice to hear uplifting stories and to be able to share photos of these beautiful children as they grow, and to see the possibilities that physician’s thought where impossible. Thank you for sharing Taylor’s Story!

  4. She is adorable nad it is great to hear that she is doing so well. 🙂

  5. Leonie says:

    Taylor is super cute! Love the pink hearing aids how fashionable 🙂 Thanks so much for sharing your story.

  6. Jennifer "Renee" says:

    Taylor is such a joy to everyone she meets. Even though she can’t talk her smile lights up the room and everyone who meets her loves her. God really blessed the Shields family when he gave them Taylor. Christy, your whole family is so precious to me. You are such a strong person and great mom. Taylor has already overcome so many things and I know she will continue to beat the odds. The fact that you are opening your heart and sharing Taylor’s story to help others is exactly why God gave Taylor to you and T. Love yall very much!

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