Hello. I am an aunt of McKenzie. I don’t have a child with this syndrome, but feel just as connected to some degree as you all are! I was told at 5 months that my unborn daughter had chloroplastic cysts on her brain, and if she didn’t die in utero she would die shortly after birth. After further investigation and follow up with a specialist, we found out that the cysts were only shadows, but who would know until birth. My miracle is now 12 years old and doing great. I agree with many of you who feel that bond with your child only get stronger and your love for your child grows deeper. Enough about me, back to McKenzie! From the very beginning, my heart and gut was telling me that this couldn’t be true and it had to be something else. I immediately became obsessed with finding out more about this syndrome so I could learn and educate myself and others. My heart only wants to be as much as a part of McKenzies life as possible, so I was determined that I wasn’t going to give up on her as many other friends and relatives had before she was even born. So much “negative” material, pictures, etc. are thrown at you, but the awesome blogs and stories such as yours that I have been reading for months helped me keep the faith. As the pictures of Kenzie show, her mom, dad, and family have been blessed with a thriving beautiful girl. I can’t wait to see her as often as I can and look forward to reading all that Mckenzie’s mom has to share with you. I commend my brother and sister in law for all of their dedication, strength, courage and patience! I know some day she will be crawling, walking, talking and doing all the other wonderful things children do! Please keep the blogs coming as I enjoy reading and seeing your beautiful “miracles.”
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Welcome! She is absolutely beautiful!!!
~Hilary
http://iwontweargrey.blogspot.com
Hello. I am an aunt of McKenzie. I don’t have a child with this syndrome, but feel just as connected to some degree as you all are! I was told at 5 months that my unborn daughter had chloroplastic cysts on her brain, and if she didn’t die in utero she would die shortly after birth. After further investigation and follow up with a specialist, we found out that the cysts were only shadows, but who would know until birth. My miracle is now 12 years old and doing great. I agree with many of you who feel that bond with your child only get stronger and your love for your child grows deeper. Enough about me, back to McKenzie! From the very beginning, my heart and gut was telling me that this couldn’t be true and it had to be something else. I immediately became obsessed with finding out more about this syndrome so I could learn and educate myself and others. My heart only wants to be as much as a part of McKenzies life as possible, so I was determined that I wasn’t going to give up on her as many other friends and relatives had before she was even born. So much “negative” material, pictures, etc. are thrown at you, but the awesome blogs and stories such as yours that I have been reading for months helped me keep the faith. As the pictures of Kenzie show, her mom, dad, and family have been blessed with a thriving beautiful girl. I can’t wait to see her as often as I can and look forward to reading all that Mckenzie’s mom has to share with you. I commend my brother and sister in law for all of their dedication, strength, courage and patience! I know some day she will be crawling, walking, talking and doing all the other wonderful things children do! Please keep the blogs coming as I enjoy reading and seeing your beautiful “miracles.”
She is absolutely beautiful! What a doll~ welcome to our family, McKenzie!! <3
Welcome!
http://www.knowingnorrah.blogspot.com